Deans' stroke musings: The experiences of stroke survivors, their families and unpaid carers regarding goal setting within stroke rehabilitation: a systematic review protocol

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, February 17, 2016

The experiences of stroke survivors, their families and unpaid carers regarding goal setting within stroke rehabilitation: a systematic review protocol

This review will be useless since survivors goals are not acknowledged. 100% recovery is the goal, yet our therapists and doctors do nothing to get us there. Existing therapy is not enough- only 10% fully recover. Your doctors and therapists should be acknowledging that they are failing stroke survivors and point to a Manhattan style project to solve all the problems in stroke. But they won't because that would be hard work and it is much easier to just stick your head in the sand and state this fuckingly stupid statement; 'All strokes are different, all stroke recoveries are different.
http://www.joannabriggslibrary.org/jbilibrary/index.php/jbisrir/article/view/2062/2792
Anna Lloyd¹
Katrina Bannigan²
Thavapriya Sugavanam³
Jenny Freeman⁴
1 Royal Devon and Exeter NHS Foundation Trust, Exeter, Devon, United Kingdom
2 Faculty of Health and Human Sciences, Plymouth University, Devon, United Kingdom
3 National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care (NIHR CLAHRC) South West Peninsula (PenCLAHRC), Centre for Clinical Trials and Population Studies, Plymouth University, United Kingdom
4 The Centre for Innovations in Health and Social Care (Plymouth University): an Affiliate Centre of the Joanna Briggs Institute

Corresponding author:

Anna Lloyd

annaklloyd2@googlemail.com

Review question/objective

The overall aim of this qualitative systematic review is to explore the personal experiences of stroke survivors, their families and unpaid carers in goal setting in stroke rehabilitation.
The objectives of this review are to:
1. Describe the experiences of stroke survivors, their families and unpaid carers in goal setting in stroke rehabilitation
2. Identify whether stroke survivors, their families and unpaid carers consider the impact of goal setting on the person-centeredness of the rehabilitation approach
3. Ascertain whether stroke survivors, their families and unpaid carers consider if goal setting enables them to effectively self manage their condition.