Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, April 29, 2018

Health Short: Research could lead to fuller recovery from stroke

It could but only when we get true stroke leadership. I've listed hundreds of research trials that need followup and many ideas about where further research is needed. But until we get leadership that knowledge is completely worthless. Our fucking failures of stroke associations are doing nothing to solve anything in stroke. In fact they are sucking up money and wasting it.
http://www.jacksonville.com/entertainmentlife/20180424/health-short-research-could-lead-to-fuller-recovery-from-stroke


Posted Apr 24, 2018 at 2:01 AM
Research could lead to fuller recovery from stroke
Despite years of effort, researchers have failed to find a pill you could take to harden your brain against injury caused by a stroke.
But new research offers the prospect of limiting a stroke’s long-term damage in a different way: with a drug that enhances the brain’s ability to rewire itself and promote recovery.
A stroke occurs when a blood vessel in the brain is blocked or ruptured, depriving the brain of oxygen. Even after oxygen is restored, permanent damage usually remains.
In experiments, both mice and macaque monkeys that suffered strokes regained more movement and dexterity when their regimen included an experimental medication called edonerpic maleate. The drug, which has already run a gauntlet of safety trials as a possible medication for Alzheimer’s disease, appears to have enhanced the effectiveness of rehab by strengthening the connections between brain cells and nourishing the chemical soup in which those cells forge those new connections.
A report appears in the journal Science. The work was conducted by researchers at Yokohama City University School of Medicine and Toyama Chemical Co., Ltd., a Japanese pharmaceutical firm that owns rights to edonerpic maleate.
Its side effects included diarrhea, nausea, dizziness and headache, and it may have caused two “serious adverse events” in human trials. But patients debilitated by strokes “are desperate for new treatments, so many would accept those risks,” said UCLA neurologist Jason D. Hinman.
— Melissa Healy, Los Angeles Times



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JCB worker went from suffering a stroke to completing a 5km run...within MONTHS

Wow, a total outlier, nothing in this story should make any stroke survivor feel better. Until this is not newsworthy your doctors and stroke hospital have a lot of work to do to make sure ALL stroke survivors get 100% recovered. No excuses for not meeting that goal.

JCB worker went from suffering a stroke to completing a 5km run...within MONTHS

When John Kavanagh arrived in hospital for rehabilitation following a stroke he was in a wheelchair and unable to walk.

Just a few months on, he was taking part in a 5km run at Trentham Gardens .

John was fit, healthy, and looking forward to a Christmas skiing trip with his son when he had a stroke on December 8.

The 51-year-old, a communications director at construction equipment manufacturer JCB , was directing a photo shoot outside The JCB Academy in Rocester when he became aware of a sharp headache on the right side of his head.

John walked back into the Academy and lost his footing. “One minute, I was fine,” says John, “the next minute, I had a blinding headache and was stumbling for no obvious reason.”



John Kavanagh at the Resolution Run
John Kavanagh at the Resolution Run

A JCB colleague noticed John had developed a facial droop. Recognising this as the a symptom of a possible stroke, he called 999 for an ambulance.

This quick response was crucial. John had had a bleed on the brain, and needed emergency care.

John was taken to Royal Stoke University Hospital , where he received emergency care in its Acute Stroke Unit. He then had specialist physiotherapy which helped him regain some movement in his left leg, which no longer worked as a result of the stroke.

“Not being able to walk was a huge shock,” says John, from Croxden, near Alton . “I went from being totally independent to being completely immobile and entirely dependent on others to do the simplest tasks.”

It wasn’t long before the therapists got John out of his hospital bed to attempt walking again,

“It was hard,” he says. “I struggled to make even the shortest step. My left leg simply wouldn’t move but when it did, I would lose my balance and start to fall. I had a therapist on either side of me to ensure I didn’t fall and another behind me with a wheelchair in case I fell backwards. The team at Royal Stoke Hospital did a great job starting me off on the road to recovery.”

John spent Christmas at the Royal Stoke and was keen to start a structured rehabilitation programme as soon as possible.

He was moved to the Royal Buckinghamshire Hospital in Aylesbury, an independent neurological rehabilitation centre. Physiotherapy and occupational sessions started on the same day.



Port Vale mascot Boomer (aka Gavin Yorke) with some of the entrants
Port Vale mascot Boomer (aka Gavin Yorke) with some of the entrants

“I came through the doors of the hospital in a wheelchair,” says John “and thanks to the professionalism of the Royal Bucks therapists, I was walking again after just two weeks.”

John’s rehabilitation, led by physiotherapist Heather Lloyd, was structured around his particular circumstances and condition.

“The best Christmas present I had last year was being taken for an assisted walk on Christmas night by Andrea Rodriguez, a Royal Stoke therapist,” he says. “That was the ‘Eureka moment’, when I realised that, with a lot more effort and determination, I stood a good chance of walking again.”

In the early days of his treatment, some friends had signed up for the Stroke Association Resolution Run at Trentham Gardens in a show of support for John and another friend, who had also suffered a stroke last year.

The run – which raises funds to help stroke victims – was rearranged from March 4 after it was hit by the weather. It raises funds for victims of strokes.

John’s plan was to be on the sidelines to cheer them on, but three months on from arriving at the Royal Bucks he took part in Sunday's 5k event himself, walking some sections and jogging others.

He has already raised more than £2,500 for the Stroke Association.



There were 5km, 10km, and 15km routes during the event
There were 5km, 10km, and 15km routes during the event

A number of runners took part in the event with Port Vale mascot, Boomer, helping runners warm up. Gavin Yorke, aged 40, of Baddeley Green, the man inside the costume, suffered a major stroke in 2014 and a mini-stroke at the end of March.

Among those taking part was Simon Fawcett, of Blurton, who completed the 10km course in 38 minutes and 29 seconds. The 37-year-old said: "It was quite tough because I ran the Cannock Chase Trail Half Marathon the day before but it was a nice course and there was plenty of support as we went around. Everyone in Trentham was great and it was really good.

"My mum had a stroke so I have seen the effects of it first hand and when I found out about this I knew I really wanted to do it."

Rob Hawley, aged 41, of Stafford, was the first person to cross the line having run the 5km race. He said: "It was a good race and a really nice route. There were tough bits and I have been to the gardens as a visitor before but never a runner.



The event is expected to have raised thousands
The event is expected to have raised thousands

"I am a keen runner and it was nice to complete the race for a really good cause."

Scott Hadley, aged 32, of Blythe Bridge, said: "It was a deceptive course and you think it's flat but there are a couple of climbs. It is the most beautiful course I have run."

Matt Lindop, aged 29, of Trentham, added: "I enjoy running and it was a scenic course. It was nice running around the gardens."

To sponsor John go to justgiving.com/fundraising/john-kavanagh8