Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, June 1, 2016

World Stroke Congress 2016 exhibit - Post Stroke Hobbies

What a fucking small idea. Nothing like ignoring all the problems in stroke, not even considering any of the  BHAGs(Big Hairy Audacious Goals) 

 that need solving: 

1. 30% get spasticity NOTHING THAT WILL CURE IT.

2. At least half of all stroke survivors experience fatigue Or is it 70%?

Or is it 40%?

NOTHING THAT WILL CURE IT.

3. Over half of stroke patients have attention problems.

NOTHING THAT WILL CURE IT.

4.  The incidence of constipation was 48%.

NO PROTOCOLS THAT WILL CURE IT.

5. No EXACT stroke protocols that address any of your muscle limitations.

6. Poststroke depression(33% chance)

NO PROTOCOLS THAT WILL ADDRESS IT. 

7.  Poststroke anxiety(20% chance) NO PROTOCOLS THAT WILL ADDRESS IT. 

8. Posttraumatic stress disorder(23% chance)  NO PROTOCOLS THAT WILL ADDRESS IT.

  912% tPA efficacy for full recovery NO ONE IS WORKING ON SOMETHING BETTER.

10.  10% seizures post stroke NO PROTOCOLS THAT WILL ADDRESS IT. 

11. 21% of patients had developed cachexia NO PROTOCOLS THAT WILL ADDRESS IT. 

 

12. You lost 5 cognitive years from your stroke  NO PROTOCOLS THAT WILL ADDRESS IT.

13.  33% dementia chance post-stroke from an Australian study?

       Or is it 17-66%?

       Or is it 20% chance in this research?

NO PROTOCOLS THAT WILL ADDRESS THIS

World Stroke Congress 2016 exhibit - Post Stroke Hobbies 

Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.
submit your hobby information
- See more at: http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpuf


Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.

My hobby is to document all the ways that the stroke world can be improved, but it doesn't lend itself to a picture.
submit your hobby information
Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.
submit your hobby information
- See more at: http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpuf

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