For something that affects hundreds of thousands each year, its rather pathetic that no stroke related association has done anything.
However for less disabling injuries/diseases there are some:
In 2007 the American Heart Association (AHA) stated that for most people, taking antibiotics for routine dental procedures was no longer recommended. Based on this recommendation, the American Dental Association (ADA) followed suit that same year, changing its prophylactic antibiotic protocol.
http://www.cancerprotocol.com/
The information found in this website is primarily directed towards those patients who have been given poor prognosis and their medical oncologist who have run out of treatment options. At a recent meeting, in Amsterdam, Netherlands, which was sponsored by the National Cancer Institute and the European Organization for Research in Treating Cancer, cautious hope emerged. A revolutionary new view of treatment protocols was put forth.
Presbyterian's Heart Attack Protocol Recognized as a Blueprint for Success
http://www.presbyterianmdlinks.org/site/news_and_publications/news_releases2/Presbyterian_VHA_Heart_Attack_Blueprint.html
Instead in the stroke world you get these bland statements.
From the American Stroke Association:
Under your doctor's direction, rehabilitation specialists provide a treatment program specifically suited to your needs. Physicians who specialize in rehabilitation are called physiatrists. The number of services you receive will depend on your needs. Services may include:
•Rehabilitation nursing
•Physical therapy
•Occupational therapy
•Speech-language pathology
•Audiology
•Recreational therapy
•Nutritional care
•Rehabilitation counseling
•Social work
•Psychiatry/Psychology
•Chaplaincy
•Patient/Family education
•Support groups
Vocational evaluation, driver's training and programs to improve your physical and emotional stamina so you can go back to work also may be part of your rehabilitation program
From the National Stroke Association:
During all phases of your rehabilitation and recovery, you will most likely work with a team of professionals from different specialties. It’s important that you get to know your health care team and feel comfortable addressing any recovery issue with them.
Services delivered during rehabilitation may include physical, occupational, speech and language therapies, therapeutic recreation, and specialty medical or psychological services.
From the World Stroke Association:
Unable to find, probably because the WSO has no interest in helping survivors.
Even a cut finger down to the bone has a protocol; Modified Duran Protocol
http://www.scribd.com/doc/13709371/Handbook-of-Orthopedic-Reahabilitation
Chapter One has the description if you are interested.
Did just find an OT one here:
http://www.scribd.com/doc/21483160/Ot-Guidelines-Stroke-Rehab-Protocol-Final
Still disappointed because it has no therapies and why to chooose such therapies. A consequence of the PMR doctor not giving a damage diagnosis.
All the stroke ones use weasel words, there has to be enough smart people out there working on this that they could at least try to write up a protocol. Or do we need to put together our stroke-addled brains and do the job ourselves.?
But first we have to break though the comment 'All strokes are different, All stroke recoveries are different'.
My thought on this is that the stroke is in between physical and mental disabilities. Although many who have a spinal disability also have a TBI, the stroke is still different. The people who have CP have many of the same challenges as a stroke survivor but still, that stroke is different because it commonly happens after birth where CP doesn't. We just might have to come up with our own.
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