If only some group in the US actually was interested in the survivors here.
http://www.stroke.org.uk/campaigns/stroke_policy/five_demands_for_action/index.html
Five demands for action: The Stroke Survivor's view
In the summer of 2007, the Department of Health undertook a public consultation on the first ever National Stroke Strategy for England.
During this period The Stroke Association encouraged stroke survivors and carers to respond, and then collated over 500 individual and collective submissions. This response was overwhelming, and the depth of feeling was apparent with so many people taking the opportunity to recount their experiences of stroke services and voice their opinions on how they should be improved.
While reading the responses it became clear that five particular themes were being mentioned over and over again. These became the Stroke Survivors’ Five Demands for Action which were endorsed by a stroke survivors summit that took place in the Houses of Parliament on 23 October 2007.
The National Stroke Strategy for England was published in December 2007 but we did not want anyone to forget the passionate responses to the consultation. We have therefore produced a booklet to capture some of the comments, as well as providing information on the stroke strategy and how to campaign in your local area. Download a PDF:
1. Stroke must be treated as a medical emergency at all times.
2. All stroke patients must be taken immediately to and spend
the majority of their time in a stroke unit.
3. All stroke survivors must receive a smooth transition from
hospital to home.
4. All stroke survivors must receive all the rehabilitation and
long-term support that meets their specific needs.
5. All transient ischaemic attacks (TIAs/mini strokes) must be
treated with the same seriousness as stroke.
They completely missed asking for a standard stroke rehab protocol
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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