Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, March 15, 2011

Patient's Subjective Experience in Stroke Rehabilitation

This would have really helped me in the first days and weeks in the hospital, rather than telling me nothing. Something to add to the stroke rehab protocol.
http://www.ncbi.nlm.nih.gov/pubmed/21371977
Abstract
Kaufman's observation that the patients' reactions to their impairments and disabilities need to be addressed in stroke rehabilitation has been shown to be an accurate and perceptive statement. In this article, 3 levels of stroke rehabilitation are outlined, and the importance of focusing on the third level (the level of subjective experience) is emphasized. Identification of the patients' subjective experience allows one to understand what is most frustrating to them. After addressing those frustrations, patients are more eager to engage the rehabilitation process. Within the context of this rehabilitation process, helping patients clarify what their subjective or phenomenological state is as it relates to their stroke is crucial in having them not only engage the rehabilitation process, but ultimately find meaning in life in the face of their stroke. This can be a difficult task because patients often do not have the words to clarify what their inner psychological experiences are following a stroke. Helping to provide guidelines for this can result in a meaningful experience for both the patient and the therapists involved in their care.
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2 comments:

  1. Glynis JollyMarch 17, 2011 at 12:14 AM

    You weren't told anything? That's shameful. Because of my age, my parents were told instead of me the 1st time. But a few weeks later when I was tranferred to the rehab. center, I was told what happened, what was going on now, and what my rehab. program would be and why.

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  2. oc1deanMarch 17, 2011 at 10:19 AM

    I had to ask my doctor what a CVA was. I was obviously the first person he had seen with my condition considering that NOTHING was told to me about rehabilitation. The conversations were mainly on my warfarin levels and arteries in the brain.

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