Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, March 3, 2011

Post-Stroke Spasticity Ask the Experts

I know this is subversive but what the hell. The National Stroke Association is having a webinar for stroke professionals. And since I am now a professional in stroke rehabilitation I qualify.
http://www.stroke.org/site/MessageViewer?em_id=9701.0&JServSessionIdr004=a7n04orm63.app202b
You can register here. It doesn't ask for a membership number and you can submit questions ahead of time.
The question box has a limited number of spaces so be succint with your questions. Mine were on how to get from stage to stage in Brunnstroms' stages of recovery, and what protocol is to be followed to cure it. I put down survivor as my professional title.
Lets crash the party, there seems to be no other way to get the attention of the NSA. In fact I think I'll register several times with different email addresses so I can ask more questions.
Ignore the email us link to advocacy@stroke.org It didn't work two months ago.

It would be great if we could get more survivors there than medical staff, I'm sure we'd have better questions.
Posted by at
Labels: , ,

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)