Deans' stroke musings: Engage with The Research Acceleration and Innovation Network (TRAIN)

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, January 10, 2013

Engage with The Research Acceleration and Innovation Network (TRAIN)

Are you a nonprofit disease research foundation? Do you partner with nonprofit funders of research? Or do you have tools that would be useful to a patient-driven, outcomes-focused medical research community? If so, we invite you engage with TRAIN:

Subscribe to TRAIN E-News, our monthly electronic newsletter, by sending an e-mail to train@fastercures.org with “subscribe” in the subject line.
Suggest items for TRAIN E-News that are of interest to the nonprofit medical research community, such as cross-sector research partnerships or innovative approaches to research design and funding.
Submit a tool, resource or publication to share with the research community by sending an e-mail to train@fastercures.org. Topics include venture philanthropy, deal-making, collaboration and commercialization of scientific discoveries.
Watch our free archived webinars and register for upcoming ones. You’ll hear experts discuss intellectual property, the reproducibility of research results, engaging with the FDA and more.
Share your professional opportunities and upcoming meetings that are of interest to the disease foundation community by sending an e-mail to train@fastercures.org.
Save the date to attend Partnering for Cures, Nov. 3-5, 2013, in New York. You will have the chance to hear from and engage with the most forward-thinking innovators in medical research, including nonprofit disease foundations.

Look how simple this is, A Great Stroke Association would be jumping all over this. And you wouldn't even need to be all that smart or experienced. I bet a grade-schooler could figure this out.