Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, June 18, 2015

Are you or a loved one living with heart disease or stroke? We want to hear from you! - Canada

At least the Canadians are trying to engage survivors. As compared to the ASA and NSA in the US who don't even seem to be making any attempt at all with survivors, except to plead for money and contacting your legislators to plead for money for research. Matt Lopez, Dr. Mariel Jessup are you listening?
http://www.heartandstroke.com/site/c.ikIQLcMWJtE/b.9284895/k.AF62/Are_you_or_a_loved_one_living_with_heart_disease_or_stroke.htm?
Please share your voice, your insights and your experience with us as we build better ways to help you – and other Canadians who will experience heart disease or stroke – to reach the best recovery possible.
You are invited to attend one of a series of focus groups being organized across Canada for stroke survivors, people living with heart disease, and family members and friends who provide them support.
There are three ways that we’d welcome your input:
  • You can join us in person. We are planning in-person focus groups in communities across the country (with some opportunity for both French and English participation). Please watch this page for updates as we confirm these locations.
  • You can join us by phone. We will be holding two national teleconference focus groups. You can join from anywhere in the country, however these two teleconferences will be in English only. See below for dates and times.
  • You can provide your thoughts and feedback online. See below for links to surveys in English and French.
Register your interest to participate in a 1½ hour focus group by:
Let us know how you would like to take part – in person, by phone or online. You will receive a confirmation by email or phone, along with the specifics on location, phone number and/or the survey link.
Online Survey
Survey in English
Click here
Survey in French
Click here

Teleconference Focus Groups
Date
Time
National teleconference for survivors/caregivers – any age
June 24, 2015
3 to 4:30 p.m. EST

In-person Focus Group
Date
Time
Alberta – Calgary
June 19, 2015

11:00 to 12:30 p.m.

Alberta – Calgary
June 19, 2015

1:00 to 2:30 p.m.

Alberta – Red Deer

June 18, 2015
12:30 to 2:00 p.m.
British Columbia - Burnaby (COMPLETED)

June 3, 2015



British Columbia - Chilliwack (COMPLETED)

June 5, 2015



British Columbia - Surrey (COMPLETED)

June 5, 2015



Manitoba – Brandon (COMPLETED)

June 12, 2015
2 to 3:30 p.m.
Manitoba – Winnipeg
June 25, 2015
10:30 a.m. to 12 noon
Newfoundland and Labrador – Gander
June 23, 2015
2 to 3:30 p.m.
Newfoundland and Labrador – St. John’s
June 22, 2015
2 to 3:30 p.m.
Nova Scotia – Halifax
June 17, 2015
1:30 to 3 p.m.
Nova Scotia – Sydney, Cape Breton (COMPLETED)

May 28, 2015


Ontario – Cornwall (COMPLETED)

June 3, 2015
1:30 to 3 p.m.
Ontario – Milton (FULL)

June 25, 2015
7:00 to 8:30 p.m.
Ontario – Ottawa – in French
June 25, 2015
1:30 to 3 p.m.
Ontario – Owen Sound (COMPLETED)

May 28, 2015


Ontario – Toronto
June 24, 2015
1:30 to 3 p.m.
Prince Edward Island – Montaque (COMPLETED)

June 12, 2015
12:30 to 2 p.m.
Quebec – Laval in French (COMPLETED)

June 16, 2015
10 to 11:30 a.m.
Quebec – Montreal in French (COMPLETED)

June 16, 2015
2 to 3:30 p.m.
Quebec – Quebec City in French (COMPLETED)

June 15, 2015
5 to 6:30 p.m.
Saskatchewan – Prince Albert (COMPLETED)

June 16, 2015
10:30 to 12:00 noon

Saskatchewan – Saskatoon (COMPLETED)

June 15, 2015
10 to 11:30 a.m.
Saskatchewan – Saskatoon (COMPLETED)

June 16, 2015
5:30 to 7:00 p.m. 

No comments:

Post a Comment