Deans' stroke musings: Views sought on Sussex stroke services

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, August 3, 2015

Views sought on Sussex stroke services

So contact them and tell them exactly where they are doing everything wrong. What are their plans to solve all the problems in stroke?
Don't let them dissemble and tell you about the processes they are doing. All we care about are results; tPA efficacy, 30 day deaths, 100% recovery. Every hospital should be required to post these results so you know which hospitals are failing stroke survivors. We don't really care about standards of care or services provided, WHAT ARE THE RESULTS OF YOUR CARE?
You have to pay it forward so future stroke survivors have an easier time of recovering than you did. And that is only possible if your hospital acknowledges that everything in stroke is a failure and needs to be worked on. Minor tweaks will not be enough, full scale tear down and rebuild of stroke services is required.
http://www.worthingherald.co.uk/news/local/views-sought-on-sussex-stroke-services-1-6880754

Health bosses are asking residents for their views on stroke services.

Clinical commissioning groups are working with hospital trusts and NHS providers across Sussex, the Stroke Association and South East Coast Ambulance Service as part of the Sussex Collaborative Stroke Services Review.
A spokesperson for the collaboration said: “Good progress has been made in enhancing stroke services for Sussex patients in recent years, particularly since the publication of the Department of Health’s national stroke strategy in 2007.
“However, we know there is much more we could still do to further improve outcomes for people who experience a stroke – with improvements in preventing strokes, acute stroke care and recovery.”
Dr Minesh Patel, senior responsible officer for the Sussex Collaborative Stroke Services Review, said: “Provider trusts – including local hospitals and community services – are currently developing options for how their stroke services could be improved to meet agreed national standards of care and ensure high-quality sustainable services for the future.
“Patient and carer feedback and experiences are key to ensuring we plan NHS services that work for our local community and your responses will be used to help evaluate the options that emerge.”
People are being asked for their views on prevention, admission, assessment and treatment, through to recovery and rehabilitation.
Residents can complete the survey at www.sussexcollaborative-nhs.uk/strok e