Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, April 4, 2016

The celebration continuues! National Stroke Association - Three decades of having a meaningful impact

Have you actually talked to ANY survivors to see if there has been anything to celebrate in the past 32 years coming from the NSA.  I thought not. Notice the new CEO. Stroke survivor Matt Lopez did not last long as the head of the NSA. If I can figure out her email she will get my thoughts on the NSA.  If the NSA is any good at all they will have tons of opposition research on me already, refuting everything I say. 
http://support.stroke.org/site/R?i=0D5KKE0qUE5v3wFe14joUA
Dear dean,
This month, we’re celebrating more than three decades of having a meaningful impact.(REALLY???) Your gift today of $32 ensures that survivors and caregivers are not alone in navigating life after stroke.
This year 795,000 people in the U.S. will have a stroke. While anyone can be impacted by stroke, we know that more women than men will have a stroke this year; minority populations will be disproportionately affected; and stroke is rapidly increasing in the younger population.
Each stroke experience and recovery journey is as unique as the person impacted. We continue to develop innovative resources, programs, and tools for the survivor community and their vital circle of care. Because of your investment, our resources are working:
  • 86% of stroke survivors make behavioral changes as result of our programs
  • 70% of caregivers feel as if they have access to tools that allow them to feel supported
Through our Faces of Stroke℠ campaign, survivors share their stroke stories, celebrate come back journeys, and find a community among other survivors. Our Careliving Community provides an outlet for the special needs of caregivers. Our Stroke Recovery Navigator℠ program provides personal support to stroke survivors and caregivers as they navigate the health, financial, and emotional struggles that can come after a stroke.
These are just a few of the free resources that your gift of $32 supports. As we celebrate another year, we invite you to make a gift today to encourage and serve those touched by stroke.
Donate now
Sincerely,
RMoore-signature.png
Robyn Moore
CEO


No comments:

Post a Comment