The answer, as pathetic as it is - is noone.
This is why you have all these survivors creating their own web pages and searching. I've done this myself with this blog.
To see what the future of stroke information dispensation should look like we only need to visit the Alzheimers Association virtual library.
http://www.alz.org/library/index.asp
As you can see they provide all these services:
answer questions about Alzheimer's disease and related dementias
search for materials on topics
locate statistics
find a certain article or book title
connect you with resources
I asked one of the librarians a question.
What are the details behind this study that says Stroke survivors double their chances of getting Alzheimers?
http://www.physorg.com/news124976505.html
Is it because of the area of the stroke?, frontal lobe,hippocampus motor,pre-motor or sensory cortex? Or do the toxins disperse throughout the brain regardless of the epicenter of the stroke? The librarians seem to be associated with various libraries and they have to look up the answers themselves. The best way would be to have a single database of information. My librarian from Syracuse was not able to answer the question. I know it was extremely hard and I didn't really expect an answer, but what I hoped would happen is that they would take the question down and pass it to their experts to solve and then get back to me via email. I might try asking this question of the 2 US associations but I know they will not know the answer. Take this question and ask your countries association what the answer is. If only to show how little they actually know.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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