Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, February 12, 2019

In the Fight Against Stroke, You’re the Cure! National Stroke Association

I wish you would stop lying. You are not trying to cure stroke, you're being fucking lazy and just putting out prevention press releases. If you were curing stroke you would list these problems in stroke you are working on.  

 These minor problems still need solving. 

1. 30% get spasticity NOTHING THAT WILL CURE IT.

2. At least half of all stroke survivors experience fatigue Or is it 70%?

Or is it 40%?

NOTHING THAT WILL CURE IT.

3. Over half of stroke patients have attention problems.

NOTHING THAT WILL CURE IT.

4.  The incidence of constipation was 48%.

NO PROTOCOLS THAT WILL CURE IT.

5. No EXACT stroke protocols that address any of your muscle limitations.

6. Poststroke depression(33% chance)

NO PROTOCOLS THAT WILL ADDRESS IT. 

7.  Poststroke anxiety(20% chance) NO PROTOCOLS THAT WILL ADDRESS IT. 

8. Posttraumatic stress disorder(23% chance)  NO PROTOCOLS THAT WILL ADDRESS IT.

  912% tPA efficacy for full recovery NO ONE IS WORKING ON SOMETHING BETTER.

10.  10% seizures post stroke NO PROTOCOLS THAT WILL ADDRESS IT. 

11. 21% of patients had developed cachexia NO PROTOCOLS THAT WILL ADDRESS IT. 

 

12. You lost 5 cognitive years from your stroke  NO PROTOCOLS THAT WILL ADDRESS IT.

13.  33% dementia chance post-stroke from an Australian study?

       Or is it 17-66%?

       Or is it 20% chance in this research?

NO PROTOCOLS THAT WILL ADDRESS THIS

In the Fight Against Stroke, You’re the Cure! - National Stroke Association


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In the Fight Against Stroke,
You’re the Cure!

As a member of the National Stroke Association (NSA) your efforts have helped to reduce the occurrence and impact of stroke. As you have likely heard by now, the NSA’s board of directors has decided to fold its efforts into those of the American Stroke Association (ASA) division of the American Heart Association (AHA). As part of that transition, I want to invite you to join the AHA/ASA’s You’re the Cure advocacy network.
You will be in good company, as you join a grassroots network of stroke and heart disease survivors, caregivers, medical providers and researchers- all working together to create healthier communities. Your voice will be a powerful and important addition as we contact lawmakers and regulatory bodies about the role they can play in our goal of finding a cure for and preventing future heart disease and stroke.
While we all celebrated the passage of the Furthering Access to Stroke Telemedicine (FAST) Act and the repeal of Medicare’s caps on outpatient therapy services in 2018, there is still much to do. We will need your help. Please sign up to be a You’re the Cure advocate today.
In addition to stroke policy, You’re the Cure advocates are fighting for medical research funding, smoke-free public places, strong emergency and healthcare systems, and so much more, all with the goal of eradicating stroke and heart disease.
I look forward to all we’ll accomplish together! And remember, in the fight against stroke and heart disease, You're the Cure!
Amy Shope Manzi
Director, Grassroots Advocacy
American Heart Association

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