Deans' stroke musings: National Stroke Association Advocacy: August Recess 2015 Talking Points

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, August 3, 2015

National Stroke Association Advocacy: August Recess 2015 Talking Points

Failure at a gargantuan scale here.Only small scale crap here. No BHAG Big Hairy Audacious Goal at all. I don't even consider the NSA a stroke association at all, nothing they do seems to be useful for survivors.

http://support.stroke.org/site/MessageViewer?em_id=29461.0&dlv_id=42821

Town Hall Talking Points (August 2015):

Stroke is a leading cause of long-term disability in the United States and the fifth leading cause of death. Each year, 795,000 people experience a stroke and there are around 7 million adult stroke survivors nationwide.
We truly appreciate the action Congress has already taken this year to help stroke survivors.
This is important to me because [personal story]
Of particular interest are the 21^st Century Cures Act(And yet the NSA was not listed among the supporting organizations), which establishes a new tracking system for neurological diseases, and funding for the National Institutes of Health. These efforts to foster medical research into the brain are crucial to finding new ways to combat stroke. For these reasons, I support the 21^st Century Cures Act, as well as increased NIH funding and ask you to do the same.
Furthermore, the FAST Act (S. 1465/H.R. 2799), spearheaded by two stroke survivors in Congress, is important legislation that would help speed up the time it takes to diagnose and treat patients experiencing a stroke. I urge you to show you support of stroke survivors around the country by co-sponsoring this bipartisan bill.
Thank you again for Congress’s support for the stroke community thus far, and please continue to help stroke survivors get the treatment and care they need.
No mention of creating a National Stroke Plan similar to the National Alzheimers Plan