Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, October 10, 2015

An open email/question to Matt Lopez, president of the NSA

If all my readers would send an email to him asking tough questions maybe he would condescend to talk to us. My email to him and his reply: What a waste of time, he totally blew me off. I would do the same for the ASA and WSO but have no email addresses, better yet would be emails to all the boards of directors. This is why the complete stroke medical leadership needs to be destroyed.
A few hundred thousand emails might concentrate his mind,

MLopez@stroke.org


Mr. Lopez,
Congratulations on taking the reins of the National Stroke Association. Now the real question comes down to: How do you want to be remembered? As a visionary, who tackled the extremely difficult problems in stroke even though there was no clue as to how to solve them? Or as a caretaker that just pushes the simplicity of F.A.S.T. and prevention? Your choice. If you do want to go down the visionary route I would suggest not listening to your staff at the NSA.
Myself, plain survivor - Deans' Stroke Musings
Amy, PT survivor - mycerebellarstrokerecovery
Rebecca Dutton OT, writer of My Last Degree: A Therapist Goes Home After a Stroke, Clinical Reasoning in Physical Disabilities
and blog - http://homeafterstroke.blogspot.com/
Barb, author, Stroke After Stroke: A Rower's Pilgrimage - barb's recovery
Peter Levine, stroke researcher, best-selling author of Stronger After Stroke - The Stroke Recovery Blog
Dr Ellen Taliaferro - Emergency Room doctor - writer of Strokedaze - http://strokedaze.typepad.com/strokedaze/
Lady Bren - writer of The World According to Lady Bren - http://ladybrensworld.blogspot.com/
Nina - writer of Mindpop - http://mindpop.net/
Blue Shoe Farm - writer of A Year of Living In My Head - http://mymorbidhead.blogspot.com/
I'm sure if you ask your staff about me I'm sure there are a few who would say he's an arrogant son-of-a-bitch who has no  authority to question the stroke world because he has no medical training. It's true, I have no training about medicine but I am a programmer and I know specifically about cause and effect and can tell when things are not working.
Contact me at any time
Dean Reinke
Dear Dean,

Thank you for your note and congratulations.  As a stroke survivor myself, I am passionate and committed to leading National Stroke Association and working with members of the community so that we can make an even greater impact within the stroke community.  As you know our mission is to reduce the incidence and impact of stroke including providing the resources and support to stroke survivors, their caregivers and circle of support. Although I am new to the organization, I always welcome constructive dialogue and look forward to becoming fully engaged with the stroke community, (Bullshit)which you and I are both a member of as stroke survivors.

Thank you again for your note.

Best regards,

Matt

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