Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, October 29, 2015

Michael J.Fox Foundation exists for one reason: to eliminate Parkinson's disease in our lifetime.

Our stroke associations should have a similar goal.
'All stroke survivors will get to 100% recovery.'
This is doable if our fucking stroke associations would get the hell out of the way. If you don't believe it is possible then resign and let better people run stroke associations. The World Stroke Day should no longer exist in 5 years because we have solved all the problems in stroke.
http://view.michaeljfox-email.org/?j=febe1779746d0d7f&m=fe9612727165037d70&ls=fe2e15707c62067e721574&l=ff6416717d&s=fe6212717360077a7516&jb=ff62167670&ju=fe4d1574726103757c1d&et_cid=391992&et_rid=61643702&et_lid=View+email+as+webpage
At The Michael J. Fox Foundation (MJFF) we wish every day was "Back to the Future Day."
Last week more than 125,000 BTTF fans, including you, joined us. You tweeted, liked, signed up and donated all because you believe in our mission to speed a cure for Parkinson's disease, so thank you! Your support is felt by the entire MJFF community. 
MJFF exists for one reason: to eliminate Parkinson's disease in our lifetime. 
Our goal is to go out of business. We want Parkinson's disease gone, and fast.
As a new follower of the Foundation, we encourage you to stay involved and double your impact by forwarding this message to a friend to join our community. Together, we can achieve a future without Parkinson's.

1 comment:

  1. I just watched the 5 minute video about their approach & promise on the Fox Foundation website:

    https://www.michaeljfox.org/foundation/promise.html?navid=our-promise

    This should be a template for stroke associations to fix the problems of stroke prevention & rehab. I share your frustration that nothing like this is happening for stroke, which affects 13 times as many people as Parkinsons per your recent post.

    ReplyDelete