Deans' stroke musings: Act Now: Urge Congress to Fund a National Parkinson’s Database

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, February 22, 2018

Act Now: Urge Congress to Fund a National Parkinson’s Database

Our fucking failures of stroke associations can't even copy a successful non-profit showing them the way to get things done.
http://view.michaeljfox-email.org/?qs=8f4be07a572e75a90d37734d4c2ebedce513a723079145d9dda6eafbb4a8cc8813046909f60f2eefbbb651cb3ea4b462770559ddf518093432117248ae4e1a862fec1f4e48b10e67a6154ec0bc62584a

Urge Congress to Fund a National
Parkinson's Database

Currently, we do not have accurate and comprehensive information on how many people are living with Parkinson's disease, who they are and where they are located. Scientists need access to this information to further research and help bring new therapies to market.

In 2016, Congress passed legislation to create the National Neurological Conditions Surveillance System, designed to gather vital patient demographic information. This would allow scientists to better understand neurological diseases, including Parkinson's, and refine their research. However, the system was never funded and has not been implemented.

Congress is debating the Fiscal Year 2018 budget and has limited time to make spending decisions. Urge your lawmakers to provide this system with full funding and finally make it a reality.