You mean you are that clueless that you don't know that young survivors, like all survivors want 100% recovery? You have to ask the obvious answer to that question?
Dear participant, my name is Oisín Cleary, and I am a PhD Researcher at Ulster University. Please read the following information before you make your decision to join this study. If you have any questions, please do not hesitate to ask the researchers stated below.
The aim of this study:
The aim of this study is to uncover specific unseen and unmet needs of young stroke as identified by young stroke survivors, stroke carers and stroke clinicians. There have been studies detailing various unmet needs of young stroke survivors such as lack of familial and financial support but research in this area is limited. This is of particular importance as over 25% of stroke occurrence happens before the age of 60 and this is increasing. By addressing young stroke survivors, stroke carers and stroke clinician’s, we wish to obtain their opinions on the specific unseen and unmet needs of young stroke.
What is required from you if you wish to take part?
You must be over the age of 18, be currently employed by a stroke service and have had experience advising a young stroke survivor between the age of 18 and 65. Before commencing the questionnaire, you must read this information sheet and read and complete the consent form provided. Additionally, you will be asked to provide a unique 4-digit code (the last 4 digits of your phone number). This will act as your participant ID number and will allow you to withdraw. Once this is complete, the questionnaire will begin. The questionnaire will take approximately 15-20 minutes to complete. Once you have completed the questionnaire, there will be an option for you to take part in the second part of this study, the online interview. If you are interested, you will be sent another information sheet and consent form for the next part of the study.
What are the possible advantages if I take part in the study?
By completing this questionnaire, you will be offering an invaluable insight into the attitudes and opinions regarding clinician-reported unseen and unmet needs in young stroke survivors. This insight can then be collated with information from young stroke survivors and stroke carers to get a detailed view surrounding the topic in the UK and Republic of Ireland.
What are the possible disadvantages if I take part in the study?
There are no known disadvantages to taking part in this study.
Being in the study is voluntary and you can withdraw at any time:
Participating in this study is completely voluntary and you are under no obligation to continue your participation for whatever reason. You can withdraw your application at any time before or during the questionnaire. Withdrawing prior to the study can be done by simply not completing the questionnaire and withdrawing during the questionnaire can be done by simply closing the browser. If you wish to withdraw your data from the study after you have completed the questionnaire, you must email the researchers within two weeks (contact details at the bottom) and provide your unique 4-digit code. They will then withdraw your information.
The procedure for anonymity and confidentiality:
Confidentiality will be ensured if you wish to take part in the online questionnaire. As researchers, we will not learn any personal information about any participants (except for some demographic information) and will thus be unable to identify any participants outside of an ID number (generated from the last 4 digits of your mobile number) that cannot be traced back to you. If you have any enquiries or wish to withdraw from the study, you can send an email to either of the researchers below. Ulster University is the sponsor or managing organisation for this study and we will use information gathered from you and/or your records in order to carry it out. We will act as the data controller, which means that we are responsible for looking after your information and using it properly, as stipulated in GDPR and the Data Protection Act 2018. Ulster University will keep your participant demographic information for 10 years after the study has been published. You can find out more about how we look after your information at: https://www.ulster.ac.uk/about/governance/compliance/gdpr
If you have any questions or require further information regarding the study, please contact the researchers below:
Oisín Cleary, PhD Researcher: cleary-o2@ulster.ac.uk
Dr. Niamh Kennedy, Supervisor: n.kennedy@ulster.ac.uk
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