Deans' stroke musings: Enhancing Patient-Reported Outcomes in Stroke Care: A Path to Improved Well-Being

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, August 28, 2025

Enhancing Patient-Reported Outcomes in Stroke Care: A Path to Improved Well-Being

Every patient should report COMPLETE FUCKING FAILURE IF THEY DON'T GET 100% RECOVERED! There are no excuses allowed, your stroke medical 'professionals' have known of this shitshow of non-recovery since school and have done nothing!

Enhancing Patient-Reported Outcomes in Stroke Care: A Path to Improved Well-Being

Nicolas Thompson Ken Uchino Brittany Lapin ^2,3¹Cleveland Clinic, Cleveland, United States Neurological Institute, Cleveland Clinic, CLEVELAND, United States³ Department of Quantitative Health Science, Lerner Research Institute, Cleveland Clinic, Cleveland, Ohio, United States

Patient-reported outcomes (PROs) present a valuable opportunity to enhance stroke care by capturing symptoms and experiences often missed by traditional outcome measures like the modified Rankin Scale. Despite similar clinician-reported scores, stroke survivors frequently experience varied symptoms across physical, emotional, and social domains that significantly impact their well-being. This commentary examines the evolving role of PROs in stroke care, highlighting their potential to guide personalized treatment strategies. We present cases demonstrating how PROs reveal meaningful clinical differences among seemingly similar patients and discuss implementation challenges in clinical practice. While barriers exist, including time constraints and the complexity of post-stroke symptoms, solutions such as specialized recovery clinics and digital health programs could help bridge the gap between identifying patient needs and delivering targeted interventions. As stroke care evolves, incorporating PROs may unlock new opportunities for improving outcomes by addressing the comprehensive needs of stroke survivors throughout their recovery

Keywords: Stroke, Recovery, patient-reported outcomes, Quality of Life, intervention - behavioral

Received: 11 Apr 2025; Accepted: 27 Aug 2025.

Copyright: © 2025 Katzan, Thompson, Uchino and Lapin. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

* Correspondence: Irene L Katzan, Cleveland Clinic, Cleveland, United States

Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.