Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, May 6, 2011

Books on stroke recovery

I've read a number of these personal accounts and while I am impressed by the determination shown and I was cheering them on. I don't think they really have much use  because they don't describe a damage diagnosis so you really can't tell whether it was the relatively easy recovery due to penumbra or bleed drainge damage or whether the person had to move functions from a dead area to another location.

In the end none of them was really satisfying.
Jill Bolte-Taylor, My Stroke of Insight;
Mark McEwan, A Change in the Weather;
Julia Fox-Garrison, Don't leave me this way : or when I get back on my feet you'll be sorry
These below I haven't personally read yet.
Tedi Bruschi, Never Give Up, My Return to the NFL
I Know How Hard You Work: A Journey Through Stroke Recovery by Paul Sybert
The Stroke Recovery Book
A Guide for Patients and Families
By Kip Burkman
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3 comments:

  1. AnonymousMay 7, 2011 at 11:07 PM

    I have to agree. I got a flood of these inspirational books in the hospital. I could not move; let alone read!
    Now it's been 2 1/2 years and after hearing all these stories--they didn't have MY stroke.
    On this blog I heard about the book

    Stronger After Stroke

    Nothing I have ever read compares to this book! It inspires me to try harder- it's not over. It makes you feel like it's not hopeless.
    READ THIS BOOK

    ReplyDelete
  2. AnonymousMay 7, 2011 at 11:09 PM

    STRONGER AFTER STROKE

    not about someones "journey"

    great book

    ReplyDelete
  3. oc1deanMay 8, 2011 at 1:49 AM

    I guess I should have pointed to all the books I have read. I'll have to repost it, it seems to have been deleted. Tomorrow when my connection is faster.

    ReplyDelete

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