I get really depressed comparing the help available to Alzheimers patients or caregivers to that available to stroke survivors/caregivers. I was given a wonderful document summarizing all the statistics associated with Alz.
Their association even has a virtual library of information available and librarians that will help you find what you need. Their info email address of alz@info.org is even answered. If you read my blog you realize I am a one person library with no assistance from any organization. Both the US stroke associations don't have anything similar. Comparing affected persons are almost the same.
5.2 million people in the US having Alzheimers.
6.4 million stroke survivors in the US.
1 in 8 chance of getting alzheimers.
1 in 5 chance of having a stroke.
Yet looking at this document you can see that it is professionally created. Who among the stroke survivors can create a similar document? The stroke associations either can't or won't. We have to do it ourselves, contact me if you want to take it on.
18 pages long
Generation Alzheimer’s
http://www.alz.org/boomers/
A Generation Stroke publication could be quite useful
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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