Dr. Tomaselli(American Stroke Association);
Bo Norrving(World Stroke Organization). What are you doing to get something similar for stroke rehabilitation? You don't even have to spend much time putting together a plan. Just ask the Alzheimers Association if you can reuse theirs and replace Alzheimers with Stroke. Survivors copy this and send it to your countries stroke association.
http://napa.alz.org/alzheimers-from-the-frontlines-
Alzheimer’s from the Frontlines: Challenges a National Alzheimer’s Plan Must Address is a collective effort by thousands of Americans to share the real and unrelenting struggles they face dealing with the disease that must be addressed in the National Alzheimer’s Plan now being created through the implementation of the National Alzheimer’s Project Act (NAPA).
Building on a commitment to provide a platform for those directly affected by Alzheimer’s, the Alzheimer’s Association and its more than 70 Chapters nationwide hosted over 130 public input sessions, a NAPA web site, and a national Telephone Town Hall to learn what Americans need in a bold and transformational plan. From their input, 10 major challenges emerged:
- A lack of public awareness (so true, we need a spokesperson)
- Insufficient research funding(If Alzheimers is insufficient then so is stroke)
- Difficulties with diagnosis (there is no diagnosis of stroke damage)
- Poor dementia care(Care for brain injuries is difficult)
- Inadequate treatments (non-existent treatments)
- Specific challenges facing diverse communities (Latino and blacks)
- Specific challenges facing those with younger-onset Alzheimer’s (incorrectly not diagnosing stroke in younger patients)
- Unprepared caregivers(how true)
- Ill-equipped communities(how true)
- Mounting costs(how true)
Take action and share your thoughts on what should go into the National Alzheimer’s Plan
Time is Brain, every minute we waste loses billions of neurons,Are you satisfied with that?
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