Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, November 17, 2012

Learn How to Make Your Voice Heard NSA email

Another email from the National Stroke Association.

I agree with the advocacy part but first we need to advocate what survivors want, which is to have the NSA focus on survivor needs rather than doctor payment  needs. My focus would be on coming up with stroke protocols and research that would stop the neuronal cascade of death. NSA - please contact me, you'll get an earful - Are you for survivors or not?

National Stroke Association

Dear dean,
Want to help improve the lives of stroke survivors and caregivers across the country and in your state? Join National Stroke Association for a new webinar called Don’t Let Policymakers Call All the Shots—Call Some Yourself on Tuesday, Dec. 4, 2012, from 1:30 to 2:30 p.m. EST. This online training will teach you how you can make a difference for the entire stroke community from the comfort of your own home or community.
This webinar is designed to inform stroke advocates, like you, about what to expect in Congress and in state legislatures in 2013. More importantly, we’ll show you how to influence your legislators and the decisions they make about stroke-related issues. We’ll also look at election trends and the issues involved in the lame-duck session of Congress (if it’s still in progress on the date of the webinar). By the end of this webinar, you’ll be able to develop your own step-by-step calendar of advocacy activities in the new year. Don’t just talk about what stroke survivors and caregivers need—learn how to make those changes a reality! (Then listen to survivors!!! like me)
Register to participate
Advocate for the 7 million stroke survivors living in the U.S. in 2013. Register today and join us on Dec. 4 to learn how!
Regards,
signed by Coral Cosway
Coral Cosway
Director, Policy Advocacy
National Stroke Association

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