Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, November 29, 2012

Stroke survivors are invisible - Change that - start blogging

I originally wrote this 2 years ago and not one person notified me about starting their blog. With 11 million new survivors a year that's pathetic. Now that I'm getting 1000 hits a day maybe this will take.Start your own stroke blog. Stroke survivors as a whole are invisible, we need to change that.
Bringing stroke out of the shadows I don't want to find out 20 years from now that survivors still do not have a voice in their stroke associations and a way to direct where the future of stroke rehab leads.
Even if all we do is document our own case study that can immeasurably help another survivor.
You can create one here on Google

How to Start a Blog on Google Blogger -

Its free and I am sure there are other sites that allow free blogging.
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When you have created one and posted a few entries please send me a link. I want to see thousands/millions out there. If it is not in English please tell me what language it is in. I will add yours to my blog list for others to find. If you want to be found by google read my posting on how to stay informed of stroke rehab


Do it now!!!!!!!

2 comments:

  1. I agree that every stroke survivor should have a blog. Just as it's true that "every stroke is different, every patient is different and every recovery is different." there is enough overlap between some of us that we can provide understanding and support simply by telling our stories. Our blogs help other survivors - sometimes with facts, ideas, or understanding.

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    1. But I still hate the medical world using the statement,'Every stroke is different, every stroke recovery is different'. Its just their shorthand version of saying they don't know enough and don't care to find out more, thats a fireable offense in my book.

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