Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, May 16, 2016

Stroke Recovery Navigator

You can try to guess what this involves from this press release. Notice the only workable links are for donations. They really don't give a shit about survivors except as money sources. Totally worthless even as a press release.
https://www.stroke.org/news-release/dramatic-results-seen-pilot-stroke-recovery-navigator-program

Dear dean,
Stroke Recovery Navigator
Make a Gift
The first days at home after a stroke are confusing and overwhelming. With your support, we offer real help.
By making a gift today, you create meaningful impact in the lives of stroke survivors and their vital circle of care. And, because of our matching gift challenge, your gift will go twice as far to meet the critical needs that stroke survivors face.
Through programs such as our Stroke Recovery Navigatorsm survivors and caregivers partner with a trained Patient Navigator for up to six months after discharge from the hospital. Given that each survivor’s recovery journey is unique, it is vital that that the Navigator and survivor co-create a plan to identify and overcome barriers, attain self-advocacy skills, and access support and resources. Our groundbreaking program empowers survivors to take control of their recovery. With the support of this program:
  • 4% of stroke survivors were readmitted to the hospital due to stroke, compared to a recent study average of 15%
  • 99% of stroke survivors reported an increased ability to resume the activities they previously engaged in socially and within their community
  • 94% of caregivers reported a decrease in the burden created when they stepped into the caregiving role
Will you make a gift today to support this important work? Don’t forget – through the generosity of an anonymous donor, your donation will be doubled to make twice the impact for our stroke community. In order for this program and our other life-saving initiatives to move forward, we need your gifts. Thank you for your support.
Warm Regards,
JamieCharbonneau signature
Jamie Charbonneau
Vice President, Development

No comments:

Post a Comment