Deans' stroke musings: The problem with complaining about the stroke system ...is that the system can't hear you.

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, June 24, 2016

The problem with complaining about the stroke system ...is that the system can't hear you.

Another insightful post from Seth Godin. If we apply this to stroke, there has to be thousands of the 10 million stroke survivors a year that know employees of the stroke associations that can be influenced to speak about all the problems in stroke and what exactly those stroke associations are doing to solve them. 10 million survivors a year plus relatives and friends could make a deafening call to action. But it is up to YOU to do this, our stroke medical professionals seem not to be able to get anything accomplished that directly helps stroke survivors. Awareness be damned.
http://sethgodin.typepad.com/seths_blog/2016/06/the-problem-with-complaining-about-the-system.html

The problem with complaining about the system

...is that the system can't hear you. Only people can.
And the problem is that people in the system are too often swayed to believe that they have no power over the system, that they are merely victims of it, pawns, cogs in a machine bigger than themselves.
Alas, when the system can't hear you, and those who can believe they have no power, nothing improves.
Systems don't mistreat us, misrepresent us, waste our resources, govern poorly, support an unfair status quo and generally screw things up--people do.
If we care enough, we can make it change.

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