Deans' stroke musings: Strokes and TAVR: More Reporting Needed?

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, February 11, 2017

Strokes and TAVR: More Reporting Needed?

Current reporting of brain damage is fucking idiotic. At least until they start reporting 3d representations of MRI and PET scans along with damage to white matter connections.
http://www.medpagetoday.com/Cardiology/Strokes/62947?

Group claims 'covert' brain damage is under-reported

by Kristina Fiore
Associate Editor, MedPage Today February 06, 2017

Citing under-reporting of certain neurologic events, a group of U.S. and European researchers has published a consensus statement on new standardized neurological endpoints for cardiovascular clinical trials. The paper calls for classification of three types of brain damage to enable better reporting: overt CNS damage such as stroke symptoms; "covert" CNS damage that lacks symptoms but is recognized on brain imaging; and neurologic dysfunction without detectable injury, such as slurred speech or temporary weakness.
The paper arises from concerns over a growing body of literature about these "covert" brain injuries following transcatheter aortic valve replacement (TAVR) and other cardiac procedures, researchers said. Co-author Michael Mack, MD, of Baylor Scott & White Health in Dallas, Tex., noted in a statement that until now, "many studies evaluating the safety of TAVR and other cardiovascular procedures only recorded the most devastating strokes, which meant that doctors – and their patients – were unaware of the full risk potential. We hope this paper will cause researchers to report their findings in a more comprehensive and consistent way so that clinicians can properly interpret the results to provide the best care to patients." Mack was a principal investigator in the pivotal PARTNER trials of the Sapien valve.
The consensus paper, developed by the Neurologic Academic Research Consortium (NeuroARC), was published in the Journal of the American College of Cardiology and European Heart Journal.