Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, September 7, 2017

Stroke can result in substantial changes to people's social networks, says new study

It should result in no change to your social networks except when your doctors fail at getting you 100% recovered. This secondary problem wouldn't exist if we had stroke protocols to get everyone 100% recovered.  I don't care how fucking big that BHAG(Big Hairy Audacious Goal) is. If that is not your doctors', therapists' and hospitals' goal then you need to fire them and publicly point out how incompetent they are.  Yeah, I'm a real bastard about this subject, but so what? No mention of

Aristotle believes that there are three different kinds of friendship; that of utility, friendship of pleasure, and virtuous friendship. 

and that you will likely lose all of the first two.

https://medicalxpress.com/news/2017-03-result-substantial-people-social-networks.html

Researchers from City have developed a new framework to explore why people's social networks change following a stroke.
The study, which is published in The Gerontologist, found that following a stroke around one third of participants changed their social type. The most common change was participants moving from a more diverse network with plentiful contact with both family and friends to a family-based network. Such changes were often due to either disability, or due to feelings of depression/hesitancy about leaving home.
As a result, the authors recommend that stroke services should consider the social impact of stroke, and how best to support those in restricted network types in order to reduce the social isolation and loneliness which can follow.
Stroke is a serious, life-threatening condition. Every year around 110,000 people have a stroke in England and it is the third largest cause of death after heart disease and cancer. It is also the leading cause of adult disability in the UK.
Following a stroke, a person is at risk of losing contact with friends and their wider social network. The social relationships a person has can profoundly impact on mood, life satisfaction, and physical health.
To investigate the change in social networks, the City researchers recruited participants from two acute stroke units and they were followed up after two weeks and six months post stroke. In-depth interviews were also conducted 8 to 15 months following the stroke.
Of the recruited participants, 71 were followed up at six months, and 29 completed in-depth interviews. These 29 participants were then classified into one of the following network types both pre-stroke and post stroke: diverse; friends-based; family-based; restricted-supported (participants had limited social ties, but felt well supported by one or two family members, e.g. a grown up child); restricted-unsupported (these participants had limited social ties with no close family).
In particular, the main shift that took place post-stroke was participants moving out of a diverse network into a family-based one. Yet despite the general trend for friendship loss, the friends-based network type appeared relatively stable: these had well-developed friendship circles prior to the stroke, and fewer family resources to turn to. Another trend was that the restricted-unsupported network type, where people had limited social contact, became more populated post stroke, rising from 3 percent pre-stroke to 17% six months post-stroke.
The research found that physical disability, particularly where a person becomes housebound, is an obstacle to maintaining a diverse network. However, other factors also appeared to be important, such as the availability of locally based friends and local supportive groups, as well as the of illness and whether a person felt vulnerable and withdrawn.
Dr Sarah Northcott, lead author of the paper and a Research Fellow based at the Division of Language and Communication Science at City, University of London, said:
"Following a stroke a person's social network is vulnerable to change. This can happen due to the physical and psychological impact of having a stroke, as well as the tendency to lose contact with friends rather than family.
"Our research found that it is not only physical disability that causes a person to shift network type, but also the psychological impact of stroke, such as depression, causing a withdrawal from social interaction. It also highlights the important role that friends and family can play in enabling a person to 'live successfully' following stroke.
"By using our social network framework we hope it will enable people to understand how relationships change following stroke, and provide appropriate support to enable people post- to re-engage socially in a way that's right for them, as well as receive the therapy and emotional support they need."
More information: Sarah Northcott et al. A Typology to Explain Changing Social Networks Post Stroke, The Gerontologist (2017). DOI: 10.1093/geront/gnx011

Journal reference: The Gerontologist search and more info website

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