Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, August 5, 2014

WYSIATI - What You See Is All There Is

The stroke problems that need solving are listed here:
The seven major problems in stroke needing solutions
And what we see is a major lack of anything useful for stroke survivors. It seems that stroke in the name does not mean what you think it means.
 
The F*cking appalling lack of even acknowledging the problems needing to be solved. Obviously they have never talked to any cognizant stroke survivor.
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At least the UK Stroke Association has a few good items in their strategy.
http://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=2&cad=rja&uact=8&ved=0CCYQFjAB&url=http%3A%2F%2Fwww.stroke.org.uk%2Fsites%2Fdefault%2Ffiles%2Ffiles%2FThe_Stroke_Association_Strategy_2010_to_2015_(March_2010)_FIN1%5B1%5D.pdf&ei=gX7hU4edNJKSyASJmoGACQ&usg=AFQjCNFwRurW3wNYxNHq0D4KoJpNdU8B2w&sig2=nUXSgFO6hgKq2JIdmGn5Sw&bvm=bv.72197243,d.aWw

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The Australian Stroke Foundation has good stuff in their strategic Plan.
http://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=5&cad=rja&uact=8&ved=0CEAQFjAE&url=http%3A%2F%2Fstrokefoundation.com.au%2Fsite%2Fmedia%2F2013_StrategicPlan_webfinal.pdf&ei=gX7hU4edNJKSyASJmoGACQ&usg=AFQjCNFuSmqtoQm5_9SIvRL5wsPiLQQIYA&sig2=DDUixcf1KEFxdqnHfu9QfQ&bvm=bv.72197243,d.aWw

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The World Stroke Organization has pathetic crap in their  work.
An example of nothing is the 
World Stroke Organization Synergium in 2010. 
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The American stroke Association has; TARGET: STROKE Time Lost is Brain Lost.
It focuses on Get With the Guidelines and door to needle times. Neither of which is going to get us to solving all the stroke problems.
http://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=15&cad=rja&uact=8&ved=0CD0QFjAEOAo&url=http%3A%2F%2Fwww.strokeassociation.org%2Fidc%2Fgroups%2Fheart-public%2F%40wcm%2F%40hcm%2F%40gwtg%2Fdocuments%2Fdownloadable%2Fucm_308277.pdf&ei=4IDhU6-TF9OkyASh14K4Dg&usg=AFQjCNFU0gElsbE1F2toSNEvJsCn_c3RCg&sig2=SjN78XCTlz6i9dKRXCmVog&bvm=bv.7a2197243,d.aWw
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The National Stroke Association has 189 results when searching for strategy on their site. But I could see nothing that even approached anything that would address the major problems in stroke.
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 We are going to have to do this on our own as a Great stroke association.
Nobody here is going to be useful in helping us solve the stroke problems out there.

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