Deans' stroke musings: We want to hear your stroke story - it could influence scientific research!

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, May 9, 2016

We want to hear your stroke story - it could influence scientific research!

From the AHA and PCORI, I'm going to be sending in the lack of interventions to the neuronal cascade of death. Send in yours, we need to somehow convince the powers that be that there are vast problems in stroke needing to be solved. Don't be polite. I may have to really hold myself back from writing a 5000 word screed. They obviously don't follow social media at all, all this is already available on stroke forums and blogs. I bet they ignore everything and just focus on their preconceived notions anyway. By focusing on unmet care they have announced that they really don't want to solve any of the problems in stroke just rearrange the deck chairs on the Titanic.
1. Make neuroplasticity repeatable on demand.
2. Make neurogenesis repeatable on demand.
3. Solve spasticity, Ignore Dr. William M. Landaus' pronouncements on this.
4. Solve fatigue.
5. Solve aphasia.

We want to hear your story - it could influence scientific research!

The Institute for Precision CV Med_600X104

Your experience could lead to the next research study to improve heart disease and stroke treatment.
If you or a loved one have had a heart attack, suffered a stroke, or are living with any kind of cardiovascular disease, your unique understanding could help guide research to solve un-met care challenges faced by individuals like you and improve heart and stroke treatment.

We want to hear your story.

In a groundbreaking collaboration, the American Heart Association (AHA) and the Patient-Centered Outcomes Research Institute (PCORI) offer you the opportunity to play a key role in influencing topics for future scientific research through a new challenge.
We invite you to share your experience, the decisions made in determining your or your loved one's treatment plans and the factors that influenced those decisions. We want to better understand your experience in order to guide research that will lead to better care tailored to the specific needs of patients.
Here are the details:

We are focused on un-met challenges faced by patients and caregivers like you.
To join this challenge, you'll be asked to provide a written submission of your first-hand experience after a heart disease or stroke event.
The story and description of the concerns you faced and the decisions you made should be personal and not a general case.(Why limit it to specific? That way you can ignore survivors knowledge of what needs to be done in general?)
A team of scientific professionals and patient representatives with expertise in heart disease and stroke will review your story. Learning more about issues and concerns important to your decision-making can help them improve experiences and outcomes for patients in the future.
If your submission is chosen, you could win $1,000 and possibly help shape the future of cardiovascular research.
All submissions must be received by June 8, 2016.

Please take this important challenge and share your insights. Your story matters. Click below to enter this crowdsourcing challenge through InnoCentive's global challenge marketplace.