Deans' stroke musings: Sativex, a cannabis based spray, was approved in England in 2019 for use in moderate to severe spasticity(only MS) when other treatments haven’t worked.

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, August 26, 2021

Sativex, a cannabis based spray, was approved in England in 2019 for use in moderate to severe spasticity(only MS) when other treatments haven’t worked.

Currently, Sativex is not approved for any indication in the US, so you are totally screwed unless you are in a legal marijuana state and want to experiment on your own. But you can't, that would only be allowed if prescribed by your doctor.

Sativex, a cannabis based spray, was approved in England in 2019 for use in moderate to severe spasticity(only MS) when other treatments haven’t worked.

Despite this, many people with MS are still being denied access to Sativex, because their local health bodies, called Clinical Commissioning Groups (CCGs), are not prescribing it. This has resulted in an unacceptable postcode lottery, with Sativex only funded in 49 out of 106 CCGs.

This must change - everyone with MS deserves access to effective treatments. Find out now if Sativex is available in your area and join our call for change. You can take action to ask your local CCG to start prescribing Sativex now.

Join our #ApprovedButDenied campaign

Sativex doesn’t work for everyone, but when it does, the impact can be life changing. Our new report (PDF 2.7MB) explains this in more detail.

Across the UK

Wales

Sativex has been approved for use on the NHS in Wales since 2014. We’re currently working with Health Boards to make sure services for people with MS are available as the NHS builds back from the impact of the pandemic. If you’d like to share with us your experience of trying to access Sativex, please email campaigns@mssociety.org.uk

Northern Ireland

Sativex was approved for use in April 2021. So far, our monitoring suggests people with MS who meet the criteria are being offered the treatment after discussion with their consultant. If you're having any issues accessing Sativex, please let us know by emailing campaigns@mssociety.org.uk

Scotland

While some people are already being prescribed Sativex, it's not currently recommended for use on the NHS in Scotland. We want GW, the manufacturer of Sativex, to make a submission to the Scottish Medicines Consortium. Your support will be vital in helping us to achieve our aim of Sativex being available in Scotland, if you'd like to share your story of what Sativex would mean to you, please email us at campaigns@mssociety.org.uk