Because no one told me anything about my stroke I started looking on the web for info and the first thing I found were stroke forums with Q and As by survivors. I started participating, mainly by answering questions, the few I asked were not answered to my satisfaction. I ended up on 15 different forums around the world, eventually getting kicked out of 3 of them for various infractions. With a push from Peter Levine I started my own blog with some of the best answers I provided. With this freedom I could discuss anything about stroke and not care about offending anyone. When starting my goal was to have more pageviews than Peter, which I think I passed him after 2 years around 15,000 views. I can't tell anymore since Peter removed pageviews from his site. You set a goal in front of me and I will succeed at it. My physical therapist one time had me on a stationary bike with a racetrack program on it and challenged me to beat the other racer in the program. That set me off and I won the race. Don't do that unless your doctor thinks you can handle the exertion.
Now the whole purpose is to completely change the way stroke research, rehab and prevention is done. It switched to that after realizing that to get survivors to complete recovery you have to go much earlier in the process for interventions. And I do consider F.A.S.T. and tPA failures because those prevented finding hyperacute therapies that stop the neuronal cascade of death.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 29,313 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Monday, April 1, 2013
What got me started stroke blogging
Labels:
advocacy,
blogs,
don't do this,
F.A.S.T.,
Peter Levine,
rants,
tPA
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment