Deans' stroke musings: Make a Difference Beyond Your Community from NSA Stroke Advocacy Network

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, September 7, 2013

Make a Difference Beyond Your Community from NSA Stroke Advocacy Network

Another wrongly directed email from NSA and Coral Cosway
Director, Policy Advocacy. She is assuming that the government cares about stroke research. Soon it will care about nothing but making the rich richer and if you have to die from a stroke, so what. What you need to do is solicit funds and drive your own research, thats the only way stroke solutions will be found. That is the only way you can directly control what is being accomplished. What you are doing with this advocacy network is doomed to failure in the long run. Does no one know how to run a business? Even the NSA is a business, in my opinion poorly run but hell if they want to fail it just means the sooner a great stroke association will take its place.
http://www.stroke.org/site/R?i=JPLoUI2gBay5OetGd7l1zQ

Dear dean,

We’re holding a training session to teach you how to effectively advocate on stroke-related policies with your elected officials. We invite you to participate in this free training session on Sept. 24 at 1 p.m. EDT and become an advocate in the fight to reduce the incidence and impact of stroke!

Why does this matter? Your elected officials make laws that impact all aspects of stroke diagnosis, treatment and rehabilitation. The more they know about the needs and challenges of the stroke community, the more they’ll be able to help change policies to support us. Here are just some examples:

Congress provides (or doesn’t provide) funding for medical research that could produce the next major advancement in stroke care;
Congress also decides each year whether stroke survivors on Medicare will have access to enough therapy services to recover to their fullest potential;
State legislators are responsible for laws that can provide or hinder the availability of specialized stroke care in rural or medically underserved areas of your state; and
State legislators can enact laws that make it easier for emergency medical personnel to diagnose stroke and get stroke patients to facilities with specialized stroke care.

Your voice can make a tremendous difference in this process. Believe it or not, citizens have an enormous influence on elected officials. You just need to know how to be most effective when communicating with them. Join us for this online educational program, Advocacy 101, on Sept. 24 at 1 p.m. EDT. We’ll show you how to tell your stroke story to your elected officials and make a difference for the entire stroke community in the process. Space is limited so reserve your space by registering today.