Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, December 15, 2023

Australian Stroke Clinical Registry (AuSCR) publishes an Annual Report -2022

 You'll notice immediately they aren't even measuring 100% recovery. No measurement, the hospitals will never get there!

Are you that blitheringly stupid? 100% recovery is the only goal in stroke, if you don't measure that you'll never get there!

“What's measured, improves.” So said management legend and author Peter F. Drucker 

 

Australian Stroke Clinical Registry (AuSCR) publishes an Annual Report 2022

Much better view of the tables at the link.

Table 1: Completeness of variables in the Australian Stroke Clinical Registry, by year
Variable
N=16,814 episodes in 2022
2021
% complete
2022
% complete
N hospitals=62** N hospitals=61
Patient details
Title 97 99
First name 98 99
Surname 98 99
Date of birth 98 98
Medicare number (optional)# 90 99
Hospital Medical Record Number (MRN) 97 98
Gender 98 98
Country of birth 99 98
Language spoken 87 89
Interpreter needed 87 89
Aboriginal and Torres Strait Islander status 91 92
Patient phone number 96 99
Complete address (street address, suburb, state) 97 91
Emergency contact
Emergency contact first name 90 88
Emergency contact last name 89 88
Address for emergency contact 63 74
Emergency contact phone number 88 85
Arrival and admission data
Date of stroke onset 95 96
Time of stroke onset 79 79
Stroke occurred while in hospital 98 99
Date of arrival to ED 97 98
Time of arrival to ED 96 98
Arrival by ambulance 94 95
Transfer from another hospital 98 99
Date of admission 100 100
Time of admission 99 99
Treated in a stroke unit 100 100
History of known risk factors
Documented evidence of a previous stroke 96 98
Acute clinical data
Brain scan after this stroke 100 100
Date of first brain scan 89 93
Time of first brain scan 86 89
Date of subsequent brain scan 100 100
Time of subsequent brain scan 99 99
Type of stroke 99 99
Cause of stroke 97 99
Acute occlusion site 100 100
Telemedicine and reperfusion
Stroke telemedicine consultation conducted 99 99
Receipt of thrombolysis 97 97
Date of delivery 96 100
Time of delivery 99 99
Adverse event related to thrombolysis 99 99
Type of adverse event 89 87
Other reperfusion (ECR) 100 100
Treatment date for ECR 100 100
Time groin puncture 99 99
Time of completing 97 98
Final eTICI 79 79
8
Table 1: Completeness of variables in the Australian Stroke Clinical Registry, by year
(continued)
Variable
N=16,814 episodes in 2022
2021
% complete
2022
% complete
N hospitals=62** N hospitals=61
24 hour data
Haemorrhage within the infarct on follow up imaging 95 100
Details 91 91
Swallowing
Swallowing screen 90 91
Date of swallowing screen 96 100
Time of swallow screen 93 94
Did the patient pass the screening 97 100
Swallowing assessment 90 91
Date of swallow assessment 96 100
Time of swallow assessment 93 98
Oral medications 83 91
Oral food or fluids 77 91
Mobilisation
Ability to walk independently on admission 93 95
Mobilised during the admission 85 94
Date of mobilisation 99 100
Method of mobilisation 96 90
Antithrombotic therapy
Antithrombotic given as hyperacute therapy 89 92
Date of administration 99 100
Time of administration 95 96
Secondary prevention
Discharge antithrombotics 97 100
Discharge antihypertensives 97 99
Discharge lipid lowering 97 100
Discharge information
Patient died during hospital stay 99 99
Date of death (for episodes deceased during hospital
stay) 100 100
Date of discharge if not deceased while in hospital 99 99
Principal diagnosis ICD-10 code(s) 85 83
Medical condition ICD-10 code(s)* 75 78
Medical complication ICD-10 code(s)* 28 29
Medical procedure ICD-10 code(s)* 72 77
Discharge destination if not deceased while in hospital 98 99
Evidence of care plan on discharge if discharged to the
community 97 97
Bold numbers indicate ≥10% missing or discrepant data.
Includes data from paediatric hospitals.
* Denominator includes some patients with no other medical condition, complication or procedure codes.
**Includes episodes of transient ischaemic attack.
ECR: Endovascular Clot Retrieval.
eTICI: Expanded Thrombolysis In Cerebral Infarction.
ICD: International Classification of Diseases.
9
Table 2: Completeness of National Institutes of Health Stroke Scale Scores in the
Australian Stroke Clinical Registry
Variable
N=16,814 episodes in 2022
2021
% complete
2022
% complete
National Institutes of Health Stroke Scale (NIHSS)
Baseline 65 69
Pre-ECR* 95 97
24 hours post-ECR 60 70
*Note: where Pre-ECR NIHSS was not captured, baseline NIHSS is used in this calculation.
NIHSS: National Institutes of Health Stroke Scale.
ECR: Endovascular Clot Retrieval.
EMERGENCY DEPARTMENT DATASET
The Emergency Department (ED) dataset is an optional program that went live on 1 July 2019.
This dataset enables the collection of data for stroke/TIA patients who presented to an ED and
prior to transfer to another hospital for ongoing acute stroke care. The ED dataset includes 85
variables. There were 26 hospitals that contributed 370 episodes of stroke during 2022 (18 in
Victoria, 6 in QLD, and 2 in SA), four more than in 2021. The completeness of ED variables
ranged from 80% (for Triage category) to 100% for a range of variables and were overall similar
to 2021.
Emergency Department dataset variables were included in the data quality report provided to
participating hospitals for the full 2022 year in May 2023.

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