At least Parkinsons has something.
Partners in Parkinson’s.
With 7 times the number of stroke survivors compared to Parkinsons, we have absolutely jackshit nothing for us. And the boards of directors of the ASA and NSA must be okay with such lack of innovation. In my not-so-humble opinion that is complete incompetence. Ask any intelligent survivor what would be useful and you would get an earful. Have you talked to any survivors at all? It is so damned simple, I give you everything you need to create something great right here:
Great stroke association
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
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