Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, April 22, 2015

American Stroke Association Needs Your Feedback

No they don't want it. Two questions in and when I answered I was over 5 years out they didn't want me anymore. If they really want feedback  it is damned easy to find survivors on the web. I really think they don't want to talk to us because they're afraid we'll tell them they are doing a shitty job and ream them out. I certainly would have a few choice words and phrases to say. And look what the point of this is: to help physicians NOT survivors. What a waste of a stroke association.

The American Stroke Association is surveying Stroke Connection Magazine subscribers to learn about experiences related to stroke diagnosis, treatment, and education.

Please help us help stroke families by participating in this research. Your answers and opinions will help the American Stroke Association create tools for physicians who care for stroke survivors.

The survey is being conducted online and will take about 20 minutes to complete.

To participate, please click on the following link, or copy it into your Web browser:

http://survey.euro.confirmit.com/wix/p1843136812.aspx?r=4337&s=RKUDRVIE

An independent research firm, Veris Consulting, Inc., is conducting the survey for us; this way you can be assured that your responses will remain confidential. All of the information we learn will be reported only in total. Individual survey takers will not be identified.

Thank you in advance for your participation!

Sincerely,

Meredith Nguyen
Director, ASA
American Heart Association/American Stroke Association
7272 Greenville Avenue I Dallas, Texas 75231www.strokeassociation.org

If you have any questions regarding the purpose of this study or how the results will be used, please contact M. Austen, Survey Manager, at mausten@verisconsulting.com.
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