Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, April 5, 2015

Feedback is the key to all learning - Why stroke rehab is a failure


A section of chapter 2 in Think Like a Freak by Steven D. Levitt and Stephen J. Dubner.
This is where your doctor and probably everyone associated with stroke is failing. Has your doctor EVER stopped to consider why so few of their patients recover fully. If they will not consider what needs to change to get better results then you need to call them out on that. 'What did you learn from not getting me to full recovery in order to better serve your next patient?' Since they didn't do that starting 50 years ago you were screwed from the start. Everything in stroke is a F*CKING FAILURE because of not following this simple idea.
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2 comments:

  1. AnonymousApril 6, 2015 at 8:46 AM

    Dean, From my perspective as caregiver, I see insurance companies tying hands of physicians, therapists, and others in the medical field. The vulture lawyers are another limiting factor in recovery. If you had a blank check what would you do to get fully recovered? Become a medical tourist? Try experimental drug cocktails? The limits of our collective knowledge on brain science is but just a thimble full from and ocean, A PhD from the Allen Institute for Brain Science said " If understanding the brain is a mile journey then we are about 3 inches along". Others have said "we don't even know what types of machines to invent to help us understand how the brain works.
    MD's are ego driven. They don't want to fail when helping the patient.

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    1. oc1deanApril 6, 2015 at 9:25 AM

      If I had a blank check it still wouldn't do much good to get fully recovered because right now there are no repeatable ways to recover. This is because we don't know exactly how to make neuroplasticity repeatable, i.e. We don't know what it takes to tell a neighboring neuron to take on a task. The solution is not in rehab, you have to get earlier in the process and stop the damage from occurring during the first week, the neuronal cascade of death. A lot of this is because our stroke medical professionals believe in the stupid meme; 'All strokes are different, all stroke recoveries are different'. It is used as an excuse for why they can't help us recover. And until our SMPs acknowledge that there are lots of problems to solve in stroke will we ever get changes. That is why I absolutely hate the F.A.S.T. campaign, it allows the stroke world to present lies as truth, i.e. getting fast to a stroke hospital will have you be able to reverse the stroke.

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