Deans' stroke musings: You can save a life - National Stroke Association

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, April 21, 2015

You can save a life - National Stroke Association

Of course you can but with the current state of stroke reporting you have no idea if your hospital is any good at all. I have yet to see any hospital report on their 30 day deaths and how much better they are than their competitors, or any reporting on the 100% recovery statistic. So if the NSA wants to do something useful then at least I would know which hospitals to avoid for my next stroke. Yes, this will be extremely disruptive for the stroke hospitals but I don't f*cking care. My brain is worth more than their poor fee-fees. Mr. Lopez, I hope you finally turn the corner and make the NSA into a survivor focused organization.
http://support.stroke.org/site/MessageViewer?dlv_id=40441&em_id=28501.0

Dear Friend,
As someone who has been touched by stroke, you know the life-changing effect it has on individuals and their families and friends. You’ve shared your stories with us, and the need for action:(Solve all the f*cking problems in stroke, that would be a good action)
“I don't want anyone else to experience the trauma of stroke. It is a scary and debilitating situation to happen to anyone. Let's eradicate this frightening occurrence.” – Cheryl
We couldn’t agree more. That’s why we hope you’ll register today for the 2015 Act FAST for Stroke Challenge to help raise awareness(Big Whoopee) and critical funds to save more lives.
This year alone, more than 100,000 people are at high-risk of dying from stroke:

Stroke kills twice as many women as breast cancer every year.
African Americans and Hispanic Americans are at higher risk than many other groups within the American population.

And, this year, your support can go twice as far through our matching gift challenge. Thanks to our generous sponsor, Bioness, all gifts made will be doubled, up to $20,000.
It’s a powerful way to come together to honor special people during National Stroke Awareness Month and help save more lives.
Thank you for all that you do.
Sincerely,
signed by Matt Lopez, CEO