Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Tuesday, May 2, 2017

Raising Stroke Awareness in May - National Stroke Association

This is why our stroke associations are fucking failures. No survivor really gives a fuck about awareness, they want 100% recovery. Have you never talked to any survivors? No mention of any of the problems in stroke.
Robyn Moore as CEO of the National Stroke Association is obviously doing nothing to solve anything. Status quo which is a complete failure. Call me, I'll give you an earful, or are you afraid?
1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals. 
http://www.strokesmart.org/May-Awareness
Posted by Lynn Bronikowski Apr 26 2017
There was a 44% spike in the number of young Americans (under 45 years old) hospitalized due to stroke over the last decade. Yet 73% of younger Americans are not familiar with stroke symptoms and the need for urgent medical attention.
About 800,000 people will have a stroke in the U.S. this year and over 130,000 will die from it.
In honor of National Stroke Awareness Month in May, the National Stroke Association created a website with a plethora of free resources that allows the public to become an advocate for stroke and educate themselves and others.
Visit www.stroke.org/NSAM to learn more about stroke and how to spot it by viewing educational videos, downloading materials and other tools, and using community presentations to help spread the word this May.
At the heart of the May stroke awareness campaign is an animated video titled “Young Stroke: An Unexpected Reality,” which offers insight about stroke and resources for stroke survivors and families.
“It is critical that we get the word out and educate younger Americans about stroke. Stroke is the fifth leading cause of death in the U.S., a leading cause of serious, long-term disability in adults, and it can happen to anyone,” said Robyn Moore, CEO of the National Stroke Association. “A stroke is a ’brain attack’ that occurs when blood flow to the brain is interrupted by a blood clot or broken blood vessel and can be caused by a number of factors. It is a myth that stroke only happens to the elderly. At the heart of the May stroke awareness campaign is an interactive video titled “Young Stroke: An Unexpected Reality,” which offers special insight about stroke in younger adults and outlines resources for younger stroke survivors and families.
Everyone’s help is needed right now to continue spreading the word about identifying stroke symptoms, since every second counts when a stroke occurs, and spotting a stroke correctly is the first step towards saving lives. One way to properly identify a potential stroke is via the FAST method.
FACE: Ask the person to smile. Does one side of the face droop?
ARMS: Ask the person to raise both arms. Does one arm drift downward?
SPEECH: Ask the person to repeat a simple phrase. Is their speech slurred or strange?
TIME: If you observe any of these signs, call 9-1-1 immediately.
Moore said the association’s online resources ask the public to help spread stroke awareness through several channels, ranging from social media, email, and presentations that can be used to learn more about this devastating disease.
Looking for ideas on how you, personally, can play a part in raising stroke awareness? A unique idea generator tool asks a few questions and then suggests a good fit for getting involved with the stroke community.
“Our 2017 campaign primarily focuses on younger stroke survivors, but it also gives people of any age the tools to become informed and spread our message about stroke,” said Moore. “Even something as simple as posting on Facebook or sending one of our colorful E-cards about stroke risks to family members, co-workers and friends will make a difference in getting everyone to wise up about the symptoms of stroke and prevention.”

No comments:

Post a Comment