Deans' stroke musings: Communication in stroke: the overlooked rehabilitation tool

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, August 7, 2017

Communication in stroke: the overlooked rehabilitation tool

But do you really want to give stroke survivors more information? It is going to make the stroke medical world look totally incompetent.
1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals.

https://academic.oup.com/ageing/article/33/5/440/40300/Communication-in-stroke-the-overlooked

Sharon Anderson Nancy J. Marlett

Age and Ageing, Volume 33, Issue 5, 1 September 2004, Pages 440–443, https://doi.org/10.1093/ageing/afh163

Published:

01 September 2004

Article history

Abstract

People who have had a stroke and their families at every stage post-stroke state that they require more information. They wish to be informed about all aspects of their stroke and their care and be involved in decision-making. Several evidence-based reviews have found that information provision in stroke is inadequate and that future work should address the expressed needs of stroke survivors and families. Utilising research and personal experience as the spouse of a stroke survivor, this author makes a plea for better communication in stroke. The first steps to achieve this include the following. (i) Acknowledgement that stroke communication needs to be improved and that improved communication could affect outcomes not only for stroke survivors and their families but for professionals as well. (ii) The content of post-stroke communication needs to be delineated. Professionals have conflicting opinions on how to talk about uncertain recovery and a life post-stroke that includes disability. (iii) Proposing that stroke communication must support identity. Communication in stroke needs to be improved and communication should support identity.