Deans' stroke musings: The Parkinson's Community Can Power New Treatments

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, April 8, 2020

The Parkinson's Community Can Power New Treatments

What a decent disease association looks like. Our fucking failures of stroke associations have ZERO OUTREACH TO SURVIVORS. I should have been contacted by every single stroke leader in the world to be on their board of directors. Of course they wouldn't like me telling them they are wrong about everything they are doing in stroke. And I'm stroke-addled.

The Parkinson's Community Can Power New Treatments

When it comes to developing new Parkinson's treatments, it's crucial to understand the experiences of people living with the disease every day.

That's why The Michael J. Fox Foundation launched Fox Insight, an online clinical study built to learn more about life with Parkinson's directly from people living with the disease. This information -- all fully de-identified to protect privacy -- is accessible to qualified researchers through the Fox Insight Data Exploration Network (Fox DEN), allowing the patient experience to accelerate Parkinson’s research.

Researchers can use the data contributed by Fox Insight participants to prioritize treatments for unmet needs. When you join Fox Insight, you may also be eligible to receive access to the 23andMe Health + Ancestry Service at no cost, and add your genetic data to the study.

Join us now to help advance Parkinson's breakthroughs.