Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, May 16, 2013

Explaining stroke 101 - from the NSA

Look at it first before I color your impression.
http://www.stroke.org/site/DocServer/Explaining_Stroke_101.pptx?docID=8321
Page 2 -You notice nothing on actually finding solutions to diagnosis, treatment, recovery. No mention of research. In other words, they are just a  press release organization. I will never donate to any org that doesn't do real work. They can easily look to the Alzheimers Foundation or the Michael J. Fox Foundation for examples. I wonder how their board of directors can live with themselves.
Page 4, 7 million survivors in the US and nothing being done for them. They are missing a huge pool of donations if they had any help in recovery for these chronic survivors.
Pages5-8, No links to references. If they expect to be taken seriously you have to document your sources.
Page 10, definition, I wish they would mention the real reason to be concerned, blood carries oxygen and neurons don't survive long without it.
Page 11, shows a carotid artery obstruction. This is not a stroke. With a fully functioning Circle of Willis that blockage as shown is harmless. It would only become harmful if the clot continued travelling and lodged in an artery in the brain.
Pages 18-20, stroke prevention. These are all so bland and non-specific as to be useless.
Page 23, no mention of how badly tPA works or the use of gluing. Nothing on any treatments that can stop the neuronal cascade of death. It seems they don't even know anything about the progression of stroke.
Page 24, recovery statistics. These are appalling and need to show changes since the NSA started.
Page 28, purpose of NSA. In my opinion they have failed because their purpose is wrong.

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