Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, November 26, 2013

New Survey Reveals Impact Of Spasticity On Stroke Survivors And Their Caregivers

60 percent of survivors have spasticity. Doctors really have no  protocols to cure spaticity.   I still swear at  William M. Landau that spasticity research should not occur after stroke.
Dr. Landau states,"'the perseverative preoccupation of professional neurologists and therapists with the purpose of overpowering the spasticity ogre seems to be an endemic, intractably-taught delusion that afflicts both academic scholars and clinicians."
http://www.napsnet.com/articles/70026.html
The American Heart Association estimates that there are nearly seven million stroke survivors in the United States. Sixty percent (n=504) of stroke survivors live with a debilitating condition known as spasticity.
National Stroke Association and Allergan, Inc. recently conducted a survey to understand the true impact of this condition on stroke survivors and their caregivers. According to the findings, 70 percent (n=300) of stroke survivors living with spasticity and their caregivers rank spasticity as one of the top three symptoms impacting their life post-stroke, ranking second only to paralysis. Yet, close to 50 percent of stroke survivors and their caregivers are unaware of the available treatment options.
Spasticity is a debilitating condition in which the muscles contract and spasm, causing stiffness and pain. Many stroke survivors who live with the condition may have upper limb spasticity, which affects the elbow, wrist and fingers, presenting as a bent wrist with fingers pointing downward, a fist that stays clenched or a flexed elbow that stays twisted against the chest.
“Spasticity is a disabling condition, but, oftentimes, patients are either uncomfortable or too overwhelmed to discuss it with their physician. The focus after someone has experienced a stroke is so commonly on preventing a second stroke that rehabilitation goals are covered in broad terms. This can leave patients and their caregivers feeling unprepared for a larger discussion about the post-stroke symptoms they may be experiencing, including spasticity. It’s critical that patients and caregivers understand that even if a person has been experiencing spasticity for years, in many cases, there are ways to help manage the condition,” said Dr. Elliot J. Roth, Medical Director of the Patient Recovery Unit and Attending Physician, Rehabilitation Institute of Chicago; Professor & Chairman, PM&R, Northwestern University Feinberg School of Medicine.
Spasticity can occur weeks, months or even years after a stroke, possibly after a patient has stopped seeing a physician for follow-up care. Spasticity continues to be underrecognized and inadequately managed.
Although 95 percent (n=780) of physicians surveyed believe spasticity has a moderate to severe impact on their patients’ lives, approximately 31 percent of neurologists and 27 percent of primary care physicians who treat stroke survivors focus their efforts on preventing a secondary stroke versus discussing physical complications like spasticity.

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