Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:

Sunday, October 16, 2016

Caring for a Survivor with Aphasia - ASA Stroke Connection article

The key sentence in there should trigger an immediate moonshot research program to have a drug that completely reverses the stroke if delivered in x amount of time. But NO, tPA has been known to be a failure since it came out in 1996 and nothing has been done to correct that fucking failure. And nothing will be done under the current leadership. You, your children and grandchildren will be screwed because of such fucking incompetency.

She was on a business trip in Orlando, when her phone rang at about 3 p.m. “The words of the neurologist ‘Your husband has had a massive stroke, and we need your permission to administer tPA still resonate with me,” she said. “He kept trying to explain tPA to me, and I kept interrupting him to say ‘give it, give it now’ because I knew there was an ideal window for its administration.” Reed was 50 years old.
Flying home that night, Mary felt overwhelmed. “I did not know if Reed would live or die,” she said. Her mind was flooded with scenarios they might face and how they might handle them. “Naturally, my greatest concern was for Reed, the love of my life, my high school sweetheart, who was too young to have a stroke. By the time I landed, he was moving his right side and I was elated. When I arrived at the hospital, the full impact of his brain injury hit me. It was not clear that he knew me when I saw him. I held his hand, tried not to let the full brunt of my emotions come through as I assured him we would get through this together and that I loved him. I am certain he did not understand a word I said.”
Despite receiving tPA, Reed was left with deficits: An almost complete inability to communicate verbally or understand what others are saying; partial paralysis on his right side; profound apraxia, which is difficulty coordinating the motor functions required to speak; and anomia, the inability to recall or say the correct words for things he wants to talk about. Reed also had some auditory processing issues, causing difficulty with how his brain processes what he hears.
Aphasia spans a wide spectrum of possible impairments, from expressive aphasia (problems communicating) to receptive aphasia (difficulty understanding what is being communicated) to global aphasia (inability to process language at all, including reading and writing). It can result from the brain injury caused by a stroke. The severity varies depending on the degree of injury to the language centers, which are primarily in the left hemisphere of the brain.

Because aphasia impairs language, it can be one of the most challenging effects of stroke, especially for couples like the Harrises. “I think that the real challenge is that personal relationships rely on communication for intimacy,” said Beth Crawford, MS, CCC-SLP and program director of the Aphasia Center of West Texas in Midland. “Couples are forced to find other ways to create that intimacy that don’t rely so heavily on language.”
Aphasia is not a problem with a one-size-fits-all solution. “It does typically improve over time,” Crawford said, “but that’s not to say that survivors with aphasia don’t continue to struggle with communication. Language is a complicated business requiring neurological capacity that may not ever be recovered.”
That has been the Harrises experience. Right after the stroke, Reed could follow one- to three-step directions, answer simple yes/no questions, read single common nouns and make his needs known through limited words such as “yes,” ”no,” “OK.” He could also use gestures such as pointing, as well as facial expressions and head movement.
More at link

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