Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Monday, October 10, 2016

Improve access to care in your community - National Stroke Association idea

My God, if you would ever actually talk to stroke survivors you would realize they care not one iota of shit about care, they want results, you godammed idiots. I will not be polite to the medical world until they actually prove they are professionals and deserve it. The first step to that is to acknowledge stroke is a massive fucking problem.
Big fucking whoopee.
http://support.stroke.org/site/R?i=edg0qyr7lKnJ0pDocPi-tw
Dear dean,
Thank you for being a generous and active member of our community. Each year, we work tirelessly to meet your growing and changing needs. In 32 years, we’ve made great progress in improving the lives of stroke survivors and caregivers and creating greater awareness for stroke. But we know you want us to do more:
  • Improve access to care in your community
  • Provide greater support and resources for life-long recovery  
  • Deliver more opportunities to increase stroke awareness in your community
Because of your support, our programs are making a difference. For example: through our Stroke Recovery Navigator℠ program, we’ve proven the value of having a one-on-one relationship with a trained navigator for survivors once they return home from the hospital. Your gifts allow this program, and many others, to expand into its next phase and reach more survivors.
Please stand with us today by making a gift. Together, we will take the next step in moving the needle for stroke survivors and their families.
Thank you again for your continued support, it means so much!
With thanks,
RMoore-signature.png
Robyn Moore
CEO
Robyn, Why haven't you contacted me yet? I'm positive at least some of your staff knows about their greatest critic.  Are you afraid of a simple minded stroke addled survivor?

2 comments:

  1. I just looked at NSA financials. In 2014 & 2015 they gathered about $3.3 million in donations each year. Most was spent on education & awareness. 10% went to internal salaries. Nothing went to research or efforts to actually fix anything.

    I suppose there is need for this, but is there any organization out there doing anything to solve problems of stroke?

    I signed up for https://www.michaeljfox.org/ updates and they seem to be doing a good job getting after Parkinson's Disease.

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    Replies
    1. Michael J Fox at least does research. This is so easy to solve, foundations would gladly supply money for a decent strategy with defined research goals. Survivors would put up lots of money for neuroplasticity and neurogenesis repeatability.

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