Deans' stroke musings: The 'Life after a Subarachnoid Haemorrhage' Conference

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, October 2, 2016

The 'Life after a Subarachnoid Haemorrhage' Conference - Saturday 5 November 2016, London

Pretty much worthless, NO discussions on how they are tackling and preventing the problems of SAH. But then you can't expect anything useful from the stroke medical world, they have no clue of cause and effect.
http://brainandspine.org.uk/life-after-subarachnoid-haemorrhage-conference

This conference is organised by the Brain & Spine Foundation as part of the charity’s commitment to improve the quality of life of people affected by neurological problems. It will be the UK’s first conference dedicated to the neurological condition Subarachnoid Haemorrhage (SAH). We are bringing together patients and carers to meet and share stories and hear from neurological experts in order to understand how SAH can affect their lives and how to manage any after effects.

Date: Saturday 5 November 2016, 9.15 am - 3.30 pm.

Venue: 33 Queen Square, London WC1N 3BG.

Programme

9.15 am to 10.00 pm – Registration and Reception

10.00 am to 10.10 pm – Welcome and Introduction with Alice Doyle, CEO of the Brain & Spine Foundation.

10.10 am to 10.30 pm – SAH and the role of a Clinical Nurse Specialist with Lesley Foulkes, Neurovascular Nurse Specialist, Wessex Neurological Centre, Southampton. Chair for the day.

10:30 am to 11.15 am – Overview of SAH diagnosis and treatment with a Neuro-interventionalist speaker TBC.

11.15 am to 11.45 am – Memory and cognitive problems after SAH with Dr. Lynne Aitkenhead, Clinical Neuropsychologist, The National Hospital for Neurology and Neurosurgery, London.

11.45 am to 12.00 pm – Break

12.00 pm to 12.45 pm – Family, social and work relationships after SAH with Sabah Khan, Clinical Psychologist, Tavistock Clinic London.

12.45 pm to 1.15 pm – A patient's and a carer’s perspective of SAH with Mrs. Kavita Basi and Mr. Lionel Winyard. Lesley Foulkes to close the first part of the day.

1.15 pm to 2.15 pm – Lunch

2.15 pm – Welcome back to the second part of the conference

2.15 pm to 3.00 pm – Fatigue following SAH with Kate Hayward, Clinical Specialist Occupational Therapist, The National Hospital for Neurology and Neurosurgery, London.

3.00 pm to 3.30 pm – Panel and Question cards. Lesley Foulkes to close the conference.

Please note this programme may be subject to changes.

Tickets can be purchased here.

Entry costs £10 per person. Limited places available.

Accessibility and dietary requirements

Please contact us to let us know if you have any accessibility and/or any dietary requirements. Drop us an email at info@brainandspine.org.uk or contact us via phone on 020 7793 5900.