Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Tuesday, October 11, 2016

ASA(American Stroke Association) Needs Your Input to Develop Resources

Wow, that was totally fucking worthless. If you want input you do it like the Stroke Association of England. And Meredith Nguyen Director, ASA gives you no way to contact her to tell her how to correctly do her job, because this was a complete fucking failure.
British Stroke Association.
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Here at the Stroke Association we are looking for a representative sample of people affected by stroke to take part in a reader panel to provide feedback and advice on our written information publications and help us to be really sure that they are meeting the needs of stroke survivors and their carers.
Reader panel members will be sent a range of publications by post or email to read at regular intervals throughout the year and will be asked to provide a range of feedback, via a method appropriate to your needs.
Whether you are a stroke survivor; a family member, a carer or friend of someone who's had a stroke; or you have an interest in stroke, if you think this role sounds interesting we want to hear from you!
To express your interest and request a role description and application form please send your name, address, email address and telephone number to us by emailing: info@stroke.org.uk
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Sorry, I can't point you to a link, they seem to have made it impossible to pass on to others, obviously are scared of the answers.



Dear Dean:

We are contacting you because you are a subscriber to Stroke Connection Magazine and the American Stroke Association needs input from adult stroke survivors and their families.

Please participate in this short survey to help us help stroke families. Your answers and opinions will enable the American Stroke Association to create tools for stroke survivors and their families.
  • As a token of our appreciation for completing the survey, you will qualify for a random drawing for one of five $25 Amazon.com e-gift codes.
To participate, please click on the link shown below, or copy it into your Web browser. This is a unique link tied to your email, so we can identify winners of the random drawing. The survey can be completed by only one user.

http://survey.euro.confirmit.com/wix/p1853438324.aspx?r=29348&s=MOWUOTII

An independent research firm, Vault Consulting, LLC, is conducting the survey for us so you can be assured that your responses will remain confidential. All of the information we learn will be reported only in total. Individual survey takers will not be identified.

Thank you in advance for your participation!

Sincerely,

Meredith Nguyen
Director, ASA
American Heart Association/American Stroke Association
7272 Greenville Avenue I Dallas, Texas 75231
www.strokeassociation.org

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