Deans' stroke musings: Find Patient-based Organizations and their Research Assets in FasterCures’ Patients Count Network

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, January 20, 2017

Find Patient-based Organizations and their Research Assets in FasterCures’ Patients Count Network

A person would think this would be useful for our stroke associations. But two words in here disqualifies our fucking failures of stroke associations. Patient-based is not something our stroke associations are doing. Stroke survivors are just pity props to pull in donations.
http://fastercures.tumblr.com/post/154690204079/find-patient-based-organizations-and-their
If you were looking for organizations that have patient registries and that partner with industry, where would you search? FasterCures has a resource for that! We have partnered with AltaVoice, (formerly PatientCrossroads) to create the Patients Count Network, a dynamic, digital directory to showcase nonprofit research funders and their research assets.
Patients Count Network is open to patient-based organizations worldwide that seek to accelerate medical progress. Organizations of all sizes, scopes and stages of growth are invited to participate!