Actually 5. Stroke has to be one. Doctors give you the fucking stupid answer of:' All strokes are different, all stroke recoveries are different.' Then they are using tPA which has an appalling full success rate of 12%, and only 10% of survivors get to almost full recovery. Those facts means doctors don't understand one fucking thing about stroke and don't have any clue about what to do next.
http://theweek.com/articles/645948/4-mysterious-medical-conditions-doctors-still-dont-understand
Despite all that medicine has achieved, there are still some
illnesses that defy treatment because it's hard for doctors to pin down
what they're treating. And because the symptoms often are perceived only
by the patient, some argue that these conditions are more psychological
than physical. For the people with these conditions, however, their
symptoms are not just psychosomatic. They spend lots of time and money
seeking relief, or at the very least, a more conclusive diagnosis.
Morgellons disease
People who believe they suffer from Morgellons disease report itching
and crawling sensations on their skin, coupled with fatigue and joint
pain. They also tell doctors that fibers or filaments seem to be
emerging from their skin. Singer Joni Mitchell claimed she had it. But CDC says the disease does not exist, at least not with any known physiological cause, and they call it "an unexplained dermopathy."
Their research, published in 2012, found that patients complaining of
Morgellons often had underlying psychiatric illness or cognitive
impairments — some likened their illness to being in a "fog."
The research team examined the fibers and found they were of the type
found in clothing, leading them to conclude that the fibers come from
patients' clothes sticking to skin lesions as they scratch themselves
raw.
Chronic fatigue syndrome
Originally called myalgic encephalomyelitis, chronic fatigue syndrome (CFS) was first described in a 1988 journal article.
CFS is sometimes diagnosed as fibromyalgia or Epstein-Barr virus
infection, which speaks to the complex and confusing nature of this
condition. Though it does share symptoms with some definable diseases,
the primary symptom of CFS is, as the name implies, an unrelenting
tiredness and lack of energy that no amount of rest can fix. This
fatigue can last for weeks or months, and sometimes be accompanied by
vague pain. While some doctors are arguing about its validity as an illness, others are looking for better ways to diagnose it, as well as possible treatments.
Complex regional pain syndrome
CRPS,
also called reflex sympathetic dystrophy syndrome, is a type of chronic
pain that usually affects one or more limbs. The affected area also
becomes red, hot, and swollen, and the skin shows changes in coloration,
sweating, and hair growth patterns. While the cause is not clear, CRPS
typically starts after the limb is fractured, crushed, or otherwise
traumatized. But the pain and other reactions are often out of
proportion to the injury. Among the theories are unseen blood vessel damage, viral infection, or the misfiring of the body's immune system in response to the injury.
Empty nose syndrome
Patients with this condition complain of breathing difficulties and
the feeling of obstructions in their nasal passages. Yet otoscopes, CT
scans, and sinus X-rays show nothing. This problem usually crops up
after a turbinectomy, a surgery to remove turbinates, shelf-like
structures in the nasal cavity. Ironically, the procedure is usually
performed to relieve nasal obstruction. After the surgery, patients may
begin complaining of nasal problems or become obsessively convinced that
there is something wrong with their noses. Michael Jackson, known for
getting repeated and extreme nose surgeries, may have suffered from
empty nose syndrome, according to a doctor who treated the singer. The syndrome has led to patient attacks on otolaryngologists, psychiatric hospitalizations, and even suicides. Yet doctors remain mystified.
This story was produced by STAT,
a national publication covering health, medicine, and life science.
Read more and sign up for their free morning newsletter at statnews.com. You can also follow STAT on Twitter and like them on Facebook.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 29,116 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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