Deans' stroke musings: Self management programmes for people living with the long-term effects of stroke

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, September 6, 2016

Self management programmes for people living with the long-term effects of stroke

Well shit, there are 10 million yearly stroke survivors that have to self manage their rehab after they are released from directed rehab. It is an easy research project, don't just do crap meta analysis, do the actual research. This would be vastly easier for survivors if our fucking failures of stroke associations had created public stroke protocols that could be followed. But that will have to wait until the existing stroke associations are destroyed.

Self management programmes for people living with the long-term effects of stroke

Authors:

Fryer CE, Luker JA, McDonnell MN, Hillier SL

Review question
What are the effects of self management programmes for people who have had a stroke?
Background
A stroke is caused by an interruption in the blood supply to parts of the brain resulting in damage that affects people's lives and changes their ability to live independently and with quality. It has been proposed that special training, called 'a self management programme', teaches people about stroke, helps them develop the skills to work with their problems and challenges, and helps them identify and achieve their own goals and help themselves.
Study characteristics
We found 14 studies up to April 2016 involving 1863 participants that looked at the benefits of these programmes for people with stroke. They were conducted in a variety of countries in a variety of formats - sometimes in groups, sometimes individually, and for varying time periods.
Key results
We found that such programmes do improve the quality of life after stroke. People with stroke reported improvements in their ability to live the way they wanted and that they felt more empowered to take charge of their lives, rather than be dependent on other people for their happiness and satisfaction with life. There were no reports of any risks or negative effects.
Quality of the evidence
The majority of the studies were well conducted and represent credible evidence that self management programmes may benefit people with stroke who are living in the community.

Authors' conclusions:

The current evidence indicates that self management programmes may benefit people with stroke who are living in the community. The benefits of such programmes lie in improved quality of life and self efficacy. These are all well-recognised goals for people after stroke. There is evidence for many modes of delivery and examples of tailoring content to the target group. Leaders were usually professionals but peers (stroke survivors and carers) were also reported - the commonality is being trained and expert in stroke and its consequences. It would be beneficial for further research to be focused on identifying key features of effective self management programmes and assessing their cost-effectiveness.